I had 2 PET scans. One was Flouradopa. The second was Glucose I took these because the doctors at Mayo Clinic believe that I have somehing that mimicks PD but it's not idiopathic PD - PD plus is a litle tougher than regular PD. They were trying to fit it into one of the other categories like Shy Dragger, Supranucleur (can't spell these ) etc. etc. So they took the two PET scans and learned that the usual areas affected in PD weren't really affected as far as the PET scan could tell. They found other areas affected, which have had me scared to death for three years now. Due to their findings I'm no longer a candidate for PD related surgeries, and doctors seem to hesitate anytimee they try changing meds. I go through H_ LL with any change. But although I put all the doctor together from the Muhammad Ali research Center of excellance, the Mayo at Scottsdale and the Doc who did the scans at UCLA, they still say they don't know for sure what it is They told me to wait two years (it's been three). But now I can't get the insurance to cover it (last time they paid a part of it.. it's ws almost 2,000 bucks a shot. Multiply that times two (flouradopa and glucose) plus the air flight tickets, the hotel, etc etc and the ordeal of having to go off all PD meds for a day before taking the pictures, it's super expensive in more ways than one. So I'm saving my pennies hoping it won't be much longer. All they're going to ccheck form is to see what direction this disease (Parkinsonism) is going. I know for a fact it's pulling me downhill, but I want to learn ore. If my kids ever get this sh_tty disease, maybe I can leave behind some detailed info about my "condition" so they stand a better chance. Sorry I got so wordy.This is a real sensitive issue for me (PET Scans). Good Luck Maryhelen