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Paul Myhre wrote: > My name is Norma Myhre and new to the PARKINSN list. I started having > tremors 3 1/2 - 4 years ago and was diagnosed with PD this past March. I am > a participant in a 2 year study and I am taking either Sinemet or > Ropinirole. The tremors seem to be mostly under control but am having > trouble with cramping in my arms, hands and slightly in the legs, sleepless > nights and achiness. Thank you all for sharing information on these > problems and others. > > I have an odd problem in that I have experienced a persistent abnormal smell > for the last 2 1/2 years. No one in the family, friends, and especially > those who claim to have a very keen sense of smell can detect the odor. > After CAT scans, x-rays and other tests of the sinuses and nostrils, I was > told it was something I probably will have to live with. I even went to a > hypnotist without any help. Very frustrating! In reading the "The PDF > NEWS" Fall/Winter 1998-1999 issue under "Mary's Mailbag" on page 14 there is > an article "What's That Smell?". It says "We've heard from some PWPs > who've lost their sense of smell, from others who complain of persistent > abnormal smells, .........". Last Monday I sent an e-mail to the PDF > Organization asking for help but have not heard from them. I have also > asked for help from the neurologist but to no avail. > > Any information or referrals you might have will be greatly appreciated. It sounds a bit odd but I too have had olfactory hallucinations (not recently or often). The sensation was a kind of "chemical" odor related to, but unlike, turpentine, toluene, benzole, etc. that I knew weren't really present. I thought hallucinations came with the various dopamine agonists for PD, but I don't take any. Cheers, Joe -- J. R. Bruman (818) 789-3694 3527 Cody Road Sherman Oaks, CA 91403-5013