As a few of yu may know, i definitely do not have Michael J Fox's version
of pd. i had my 1st symptom in '94, was diagnosed in '95 and completely
lost the ability to walk in 3/99. i have no on's or off's, tremor, no
dyskenesia - just freezing of my legs which now feels more like paralysis.
A month ago i tried a different neuro. [my wife & sister went on the last
appt. with the previous one & didn'tcare for him + I can see him only for 20
min. 3 times a year + he won't respond to faxes & since my speech is mostly
unintelligible that's it!!]. I have tried all the drugs & only sinement
seems to do just a little bit of good.
This new neuro immediately suggested a PET scan, which he just called my
wife with the results. He said that he could see no sgns of MSA, SDS, SNP,
or any of the other PD+ diseases + he said he saw no sign of PD either so i
dont have PD! [he furthermore said i needed to see a movement disorders
specialist, {MDS} which i thought this guy was {Dr. Avery Katz in Clifton,
NJj} - i didn;t know that neuro's who billed themselves as pd specialists
did not consider themselves MDS's]
Does anyone out there know if this dr is correct- can a PET scan completely
rule OUT PD? I surely do have something & it does closely resemble PD in
many ways.
THANKS, right now i don't know what to do or where to go
Bruce Anderson [53, 5]
[log in to unmask]
Schooley's Mtn, NJ
Message -----
From: Marty Polonsky <[log in to unmask]>
To: <[log in to unmask]>
Sent: Monday, June 14, 1999 5:39 PM
Subject: Re: PET Scans
> Joe,
> II knew about the high expense of PET scans but I did not know that they
were
> any more dangerous than, e.g., a CT scan. As you know, they present a
> potetially significant development in research and diagnosis in their
> capacity to visually portray the poverty of dopaminergic activity in the
> substantia nigra.
> Marty Polonsky
>
