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Charlie, ANY digging you could do on my behalf wouldd be greatly appreciated. Besides basically what feels like a partaial paralysis of my legs [ i can feel them but they won't support me, & my feet freeze], my other symptoms are: -severe quality of speech deterioration, -inability to write intelligibly [teeth brushing & typing also affected], -excess drooling & some modest swallowing problems/ -occasional constipation, both occasional urgency of urination and slowness of starting urinatiion flow, -stooped posture causing occcasional back pain, and [perhaps unrelated], -forced eyelid closings, which caused a car wreck, diagnoed as bletharospasm but which has not been helped by repeated botoxin injections as well as neurontin & clonazepan [after which the neuro opthamalogist at a famed central NJ hospital said he was out of ideas] Incidentally, my first symptoms were speech deterioration, shoulder pain and a resting tremor in one hand. The only thing any of the neuros I have had [5 + various neuros at the VA] have ruled out specifically has been Progressive Supra-nuclear Palsey, with an eye test. Sinement MAY have a subtle beneficial effect, but i;m not certain of that. Charlie, i realize you didn't volunteer to be my diagnostisian, just to answer a specfic question re the PET scan. I guess i'm just putting this sorry tale out there again in case someone recognizes this combo of symptoms as something with a name, while, of course, i continue to look for a doctor who can!! Thanks, bba [53, 5] ----- Original Message ----- From: Charles T. Meyer, M.D. <[log in to unmask]> To: <[log in to unmask]> Sent: Wednesday, June 16, 1999 8:12 AM Subject: Re: PET Scans-advice requested > Bruce, > > Because of the seriousness of the diagnosis or lack thereof I want to qualify > my statement a bit. If there is no sinemet response and the PET scan is > negative in terms of no decreased activity and a sinemet response is also not > present, then PD is highly unlikely. If either is positive then I would say > that it is equivocal. I don't know whether the diagnosis of PD is > "officially" sanctioned in this way- I will check- but I think the chance > is quit small that the diagnosis of PD could be made in the absence of both of > these parameters. > > Charlie > > "B. BRUCE ANDERSON" wrote: > > > Thank you, Charlie. I had no idea that the PET scan was that definitive - > > i'd surely have had one years ago if i had known. > > -- > **************************************************************************** ************** > > Charles T. Meyer, M.D. > Middleton (Madison), Wisconsin > [log in to unmask] > **************************************************************************** ************** >