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Bruce, I did look at the pet scan data and while I did not se the words "definitive diagnosis, I think they were going beyond that and differentiating between the" types of PD" by the Pet scan which they seem like they are doing with you. Yet, you do have a lot of PD-like symptoms. Were you ever exposed to Carbon Monoxide (severely or chronically) ? That is the only thing I can think of off the top of my head. Charlie "B. BRUCE ANDERSON" wrote: > Charlie, ANY digging you could do on my behalf wouldd be greatly > appreciated. Besides basically what feels like a partaial paralysis of my > legs [ i can feel them but they won't support me, & my feet freeze], my > other symptoms are: > -severe quality of speech deterioration, > -inability to write intelligibly [teeth brushing & typing also affected], > -excess drooling & some modest swallowing problems/ > -occasional constipation, both occasional urgency of urination and slowness > of starting urinatiion flow, > -stooped posture causing occcasional back pain, and [perhaps unrelated], > -forced eyelid closings, which caused a car wreck, diagnoed as > bletharospasm but which has not been helped by repeated botoxin injections > as well as neurontin & clonazepan [after which the neuro opthamalogist at a > famed central NJ hospital said he was out of ideas] > Incidentally, my first symptoms were speech deterioration, shoulder pain > and a resting tremor in one hand. > > The only thing any of the neuros I have had [5 + various neuros at the VA] > have ruled out specifically has been Progressive Supra-nuclear Palsey, with > an eye test. > > Sinement MAY have a subtle beneficial effect, but i;m not certain of that. > > Charlie, i realize you didn't volunteer to be my diagnostisian, just to > answer a specfic question re the PET scan. I guess i'm just putting this > sorry tale out there again in case someone recognizes this combo of > symptoms as something with a name, while, of course, i continue to look for > a doctor who can!! > > Thanks, > bba [53, 5] > > ----- Original Message ----- > From: Charles T. Meyer, M.D. <[log in to unmask]> > To: <[log in to unmask]> > Sent: Wednesday, June 16, 1999 8:12 AM > Subject: Re: PET Scans-advice requested > > > Bruce, > > > > Because of the seriousness of the diagnosis or lack thereof I want to > qualify > > my statement a bit. If there is no sinemet response and the PET scan is > > negative in terms of no decreased activity and a sinemet response is also > not > > present, then PD is highly unlikely. If either is positive then I would > say > > that it is equivocal. I don't know whether the diagnosis of PD is > > "officially" sanctioned in this way- I will check- but I think the > chance > > is quit small that the diagnosis of PD could be made in the absence of > both of > > these parameters. > > > > Charlie > > > > "B. BRUCE ANDERSON" wrote: > > > > > Thank you, Charlie. I had no idea that the PET scan was that > definitive - > > > i'd surely have had one years ago if i had known. > > > > -- > > > **************************************************************************** > ************** > > > > Charles T. Meyer, M.D. > > Middleton (Madison), Wisconsin > > [log in to unmask] > > > **************************************************************************** > ************** > > -- ****************************************************************************************** Charles T. Meyer, M.D. Middleton (Madison), Wisconsin [log in to unmask] ******************************************************************************************