Sorry for the private message on the List, but Roger, your return address
didn't work and i wanted to that you.......
----- Original Message -----
From: B. BRUCE ANDERSON <[log in to unmask]>
To: <[log in to unmask]>
> Roger, what a wonderful, complete response! Right now my problem is
> insurance - the only facility in NYC that is covered is Mt. Sinai.
However,
> we are switching companies in August & will try to find out now if
this
> is covered.
>
> ----- Original Message -----
> From: Roger Buxton <[log in to unmask]>
> To: <[log in to unmask]>
> Sent: Tuesday, June 15, 1999 10:49 AM
> Subject: Re: PET scans etc.
>
>
> > Bruce -
> >
> > You should try to see Dr. Stanley Fahn, Director, (or other of his
> > staff) at
> > The Center for Parkinson's Disease and Other Movement Disorders
> > The Neurological Institute
> > 3rd. floor
> > 710 West 168th. Street
> > New York
> > NY 10032-3784
> > tel: 212 305-5779
> > fax: 212 305-1304
> > e-mail: [log in to unmask]
> >
> > The Center is part of the Columbia Presbyterian Medical Center (CPMC),
> > which is located just south of the George Washington Bridge on the west
> > side of Manhattan along Fort Washington Avenue. They are experienced at
> > differentiating between various movement disorders, which is the first
> > step before choosing treatment.
> >
> > There is a PET facility at CPMC (or at least I have seen signs pointing
> > to it!), and Dr. Fahn's group have an association with another PET
> > facility at the
> > North Shore University Hospital
> > (Cornell University Medical College)
> > Biomedical Research Building
> > 350 Community Drive
> > Manhasset
> > NY 11030
> > with Dr. David Eidelberg as director. It's located on Long Island, about
> > 45 mins by car from CPMC. The appointment secretary is Seda ("Say'-dah")
> > at tel 516 562-1055.
> >
> > Both these groups have been involved in the evaluation of patients in a
> > study of the effects of fetal tissue implants, of which Judy (see
> > signature below) is one. Curiously, one of the early results of the
> > study (released at a AAN conference here in Toronto in April) is that
> > for patients over 60, the increase in dopamine (seen in the PET images)
> > resulting from the implants did not translate into a corresponding
> > improvement in movement function within one year of the implant, whereas
> > it did for patients younger than 60. So, as revealing as a PET image is,
> > it still doesn't answer all the questions.
> >
> > Dr. Fahn is the grand-daddy of PD these days, so I expect you will get a
> > fair hearing. He's certainly busy and much in demand, so I cannot
> > promise whether you will get to see him or one of his staff. However,
> > since you seem to have an odd form of disorder, it is probably worth
> > your while to wait to get his/their opinion. Besides, with PD or its
> > cousins, any delay is a nuisance (albeit an uncomfortable one) but not
> > is life-threatening, so it can be tolerated. The Center's receptionist,
> > Rennay, can be a little curt on the phone, but, again, tolerate it if it
> > happens, for Dr. Fahn is quite the opposite and has a very gentle and
> > reassuring manner. If you should see Dr. Greene, you may find him to be
> > a little brusque, but he knows his stuff and will give you good care.
> >
> > As time will be of the essence during your first appointment, be
> > prepared. Be ready to describe (or better still, have written down) your
> > symptoms, their history, your treatment (usually medications; therefore,
> > what you have taken and what you take now, how much and when during a
> > day) and your response to them, and your PET image. Obviously, the more
> > detailed and accurate information you can give them, the quicker and
> > more reliably they can assess your situation. Above all, be honest: PD
> > patients don't like feeling or presenting themselves as affected, and
> > like to put their best foot forward in new company, but that isn't
> > always the best policy, especially in front of someone who is trying to
> > assess you. Revealing the truth may hurt one's pride a little, but the
> > truth is what is needed to properly cope with your situation. And I can
> > assure you that noone at the Center will think any the less of you for
> > having a disorder, regardless of its severity.
> >
> > I hope this info helps, and if we can assist further, feel free to
> > contact us. Good luck!!
> >
> > Rgds
> >
> > *****************************************************************
> > * Roger Buxton & Judy Hazlett Tel: +1 905 477-0335 *
> > * 34 Foxglove Court Fax: +1 905 477-0335 *
> > * Unionville, Ontario e-mail: [log in to unmask] *
> > * L3R 3Y3 web: www.inforamp.net/~rbuxton *
> > * Canada *
> > *****************************************************************
> >
> >
> >
> >
> >
>
