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hi all

At 09:15 1999/06/22 EDT, patricia wrote, in part:
>I thought I was seeing a movement speclialist, Dr. Hubble
>at OSU Medical center....

does she specialize in pd?
how many other pd patients does she have?

>She keeps trying different meds. I'm taking Sinemet CR(2),
>Permax(6),150 mg of zoloft, and HRT once a day...

oh heck
those words 'keeps trying different meds...' raise the hairs on my neck -
probably an over-reaction due to joe's story
but still something to be wary of
we must be our own advocates of
low and slow meds titration

what doseage sinemet and permax?
how have your symptoms changed as your meds have been changed?
have you tried 'tracking' them through the day as per brian collins' method?

>The trouble is I don't know if my feelings are a normal progression
>of the disease or the meds or lack of. My tremor has been stopped
>but freezing and stiffness are my constant companions.  Shouldn't the
>medicene do more or is that wistful thinkng?...

no it's not wishful thinking
sinemet isn't called the gold standard of pd meds for nothing

in very simple terms in re sinemet and symptoms:
if you are suffering freezing and stiffness
you are undermedicated
if you are suffering dyskinesia
you are overmedicated
if you are not suffering either
you are just right

you are a relative newbie to both pd and sinemet
you should be in your 'honeymoon' years with sinemet right now
with virtually all symptoms controlled by meds
in my humble opinion

even after 11 years of sinemet and 14 years of symptoms
now that i am developing 'on/off' fluctuations
and sensitivity to sinemet
i can honestly say that i have never felt physically worse with pd
than when i was pre-sinemet

sinemet was a god-send to me in re my stiffness and rigidity
[it makes the stiffness 'melt' into nothing - aahh!]
and it should be to you too
in my humble opinion

howzabout discussing this with her?
if you don't feel satisfied
it's time for a second
opinion


janet

janet paterson
52 now / 41 dx / 37 onset
PO Box 171  Almonte  Ontario  K0A 1A0  Canada
a new voice http://www.geocities.com/SoHo/Village/6263/
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