Miss Barb,
Thank you, I do take vitamin 1200 I U and I also take 2000 mgs of
Calcium aday. Just when I have been very active and play very hard I get the
leg cramps at night. I am also trying to get my meds right. I went to a new
Doc and she took me off Sinemet and Parlodel and put me on Requip that made
me very sick. When I went back to see her she told me that I was
psychosomatic and to a psychologist that I did not have PD. Then I started
to leave and she said then again I just might have it to come and see her in
six months. She would not give me any meds. So I went to see a psychologist
and he said that I was not psychosomatic. So I am back on Sinemet two times
aday 25/100 until I see my Doc at Kaiser in July. I feel much better on it
that off. Who would want this dumb pd any way not me for sure. I do not
planed to go back and see her again. She was a movement disorder Doc.
Janice 51 almost 52/50/46
----- Original Message -----
From: Barb_MSN <[log in to unmask]>
To: <[log in to unmask]>
Sent: Tuesday, June 22, 1999 12:28 PM
Subject: Re: Bionic Barb
> Thanks Janice! And say, ya might wanna try taking approx.. 800
> to 1200 ICUs of vitamin E daily to rid yourself of those nasty leg
> cramps If you go ahead and take the vitamin E, you should have
> pretty speedy positive results.
>
> I've also had positive results from taking calcium (in a coupla
> daily "TUMS" tablets), but prefer the vitamin E as my mouth tastes
> awful after the TUMS.
>
> So there ya are - getting not one, but two suggestions on how to
> rid yourself of them darn leg cramps!
>
> Barb Mallut (former member of the "Killer Leg Cramp Club")
> [log in to unmask]
>
> -----Original Message-----
> From: Janice Morgan <[log in to unmask]>
> To: [log in to unmask] <[log in to unmask]>
> Date: Tuesday, June 22, 1999 7:40 AM
> Subject: Re: Bionic Barb
>
>
> >Hi Barb,
> > I woke up last night because I had bad leg cramps, I though
> I heard
> >some one yell YEEEEAAAAAHHHHHH!!!! I am very glad to hear it was
> you and
> >that your voice is back. Love Janice
> >----- Original Message -----
> >From: Barb_MSN <[log in to unmask]>
> >To: <[log in to unmask]>
> >Sent: Tuesday, June 22, 1999 12:14 AM
> >Subject: Bionic Barb
> >
> >
> >> Dear List-family....
> >>
> >> YYYYYEEEEEHHHHAAAAAWWW!!! <---Barb, yelling LOUDLY in
> excitement>
> >>
> >> As of tonite, I have my REAL voice back! Back, and LOUD, if
> >> that's how I wanna speak! YEA!!!!!!!!!!!!
> >>
> >> UCLA's Dr. Gerald Burke injected collagen into both vocal cords
> >> this afternoon, and now at 11:45 p.m., my "normal' speaking
> voice
> >> has returned!!!!!! Well, "returned" for
> >> 3 to 6 months, anyway.... till the collagen's absorbed by my
> body.
> >>
> >> But HEY - guess what? Next time my "normal" voice starts
> fading
> >> away to a breathy whisper I'll have not one option, but TWO.
> >> Yup folks... TWO, as in 1-collagen injections lasting 3 to 6
> >> months, or, 2- a long-term ("long-term," as in as long as the
> PD
> >> stays slow moving as it's been for almost 25 years) tiny,
> >> man-made, hammer-shaped thingee implanted into my vocal cords
> via
> >> the passage thru the thyroid capsule (inserted right THRU the
> >> capsule AROUND and/or past the thyroid).
> >>
> >> The tiny "thingee (has a long medical name which I can't
> recall,
> >> but I'll get it from Dr, Burke tomorrow and List-post it)
> >> procedure accomplished in a 1/2 hour operation in the doctor's
> >> office and has been performed on folks with vocal cord problems
> >> for about 10 years or more, according to Dr, Burke and also by
> >> many other neck and throat specialists all over the world.
> >>
> >> Only recently has this type of surgery been done on Parkies,
> and
> >> WHICH Parkie gets it is decided by their own neck and throat
> >> specialist/surgeon, based upon their PD being rather slow
> moving
> >> (as in slowly degenerating rather than swiftly moving). I'm
> not
> >> too sure what constitutes "slowly moving" to the DOCTOR, but to
> ME
> >> that means the vocal cords are stable enough to permit the
> "tiny
> >> thingee" to remain implanted for at LEAST a year or longer
> before
> >> needing to be replaced by a new one cut to fit the changing
> vocal
> >> cords.
> >>
> >> Since I won't be a candidate for this procedure till the
> collagen
> >> which I got today is absorbed by my body (3 to 6 months),
> >> obviously I cannot share more about this surgery till I've had
> it.
> >> But since it's apparently so well known by neck and throat
> >> specialists, if you'd like to know more about it (like cost -
> >> Medicare covers it, by the way), I suggest ya call the nearest
> >> teaching hospital/university and ask for their neck and throat
> >> clinic... They 'll no doubt be able to fill ya in on this
> >> relatively minor operation.
> >>
> >> OH.... and ya might hear some MD's saying this surgery ISN'T
> for
> >> PWP's, but Dr. Burke SWEARS it CAN be successful when performed
> on
> >> a Parkie, provided the doctor makes sure BEFORE the operation
> that
> >> the patient's PD is indeed slowly to degenerate.
> >>
> >> (NON-proofed for errors or typos)
> >>
> >> Barb Mallut (written in haste, 'cause I'm awfully tired now)
> >> [log in to unmask]
> >>
> >
>
