Miss Barb, That I will do, vanilla is my favorite so I will stock up on it. The weight I lost on Requip will find its way back on me then. LOL I will have to toss the two piece swim suits then.:)). I am to old for them anyway. Janice ----- Original Message ----- From: Barb_MSN <[log in to unmask]> To: <[log in to unmask]> Sent: Tuesday, June 22, 1999 9:10 PM Subject: Re: Bionic Barb > Janice... > > My heart really goes out to you having that miserable doc tell you > your symptoms were "psychosomatic." I get knots in my stomach > whenever I hear of a medical "professional" sticking that label on > someone. In fact, prior to getting my PD diagnosis, I was told > by a coupla doctors the vague symptoms I had experienced for 7 > years were "in my head." > > Uhhhh.... well in a way, that was a correct diagnosis, considering > where PD originates from, but DAMN, it hurts to be called a > hypochondriac when you KNOW you've got something wrong going on > inside you - something that's scary and ya can't hang a name on > it. > > Listen, m'dear... if you're already taking vitamin E and calcium, > might I suggest sitting down with a big bowl of ice cream and > leisurely spooning it into your mouth, bite by bite > by bite? Mmmmmmm, YUMMY! HEY.... it ain't no cure for what ails > ya, but it's a WONDERFUL distraction. <LOL> Your choice of > flavors, of course.... <smiling> > > Barb Mallut > [log in to unmask] > > -----Original Message----- > From: Janice Morgan <[log in to unmask]> > To: [log in to unmask] <[log in to unmask]> > Date: Tuesday, June 22, 1999 6:01 PM > Subject: Re: Bionic Barb > > > >Miss Barb, > > Thank you, I do take vitamin 1200 I U and I also take 2000 > mgs of > >Calcium aday. Just when I have been very active and play very > hard I get the > >leg cramps at night. I am also trying to get my meds right. I > went to a new > >Doc and she took me off Sinemet and Parlodel and put me on Requip > that made > >me very sick. When I went back to see her she told me that I > was > >psychosomatic and to a psychologist that I did not have PD. Then > I started > >to leave and she said then again I just might have it to come and > see her in > >six months. She would not give me any meds. So I went to see a > psychologist > >and he said that I was not psychosomatic. So I am back on Sinemet > two times > >aday 25/100 until I see my Doc at Kaiser in July. I feel much > better on it > >that off. Who would want this dumb pd any way not me for sure. I > do not > >planed to go back and see her again. She was a movement disorder > Doc. > >Janice 51 almost 52/50/46 > > > >----- Original Message ----- > >From: Barb_MSN <[log in to unmask]> > >To: <[log in to unmask]> > >Sent: Tuesday, June 22, 1999 12:28 PM > >Subject: Re: Bionic Barb > > > > > >> Thanks Janice! And say, ya might wanna try taking approx.. 800 > >> to 1200 ICUs of vitamin E daily to rid yourself of those nasty > leg > >> cramps If you go ahead and take the vitamin E, you should > have > >> pretty speedy positive results. > >> > >> I've also had positive results from taking calcium (in a coupla > >> daily "TUMS" tablets), but prefer the vitamin E as my mouth > tastes > >> awful after the TUMS. > >> > >> So there ya are - getting not one, but two suggestions on how > to > >> rid yourself of them darn leg cramps! > >> > >> Barb Mallut (former member of the "Killer Leg Cramp Club") > >> [log in to unmask] > >> > >> -----Original Message----- > >> From: Janice Morgan <[log in to unmask]> > >> To: [log in to unmask] > <[log in to unmask]> > >> Date: Tuesday, June 22, 1999 7:40 AM > >> Subject: Re: Bionic Barb > >> > >> > >> >Hi Barb, > >> > I woke up last night because I had bad leg cramps, I > though > >> I heard > >> >some one yell YEEEEAAAAAHHHHHH!!!! I am very glad to hear it > was > >> you and > >> >that your voice is back. Love Janice > >> >----- Original Message ----- > >> >From: Barb_MSN <[log in to unmask]> > >> >To: <[log in to unmask]> > >> >Sent: Tuesday, June 22, 1999 12:14 AM > >> >Subject: Bionic Barb > >> > > >> > > >> >> Dear List-family.... > >> >> > >> >> YYYYYEEEEEHHHHAAAAAWWW!!! <---Barb, yelling LOUDLY in > >> excitement> > >> >> > >> >> As of tonite, I have my REAL voice back! Back, and LOUD, > if > >> >> that's how I wanna speak! YEA!!!!!!!!!!!! > >> >> > >> >> UCLA's Dr. Gerald Burke injected collagen into both vocal > cords > >> >> this afternoon, and now at 11:45 p.m., my "normal' speaking > >> voice > >> >> has returned!!!!!! Well, "returned" for > >> >> 3 to 6 months, anyway.... till the collagen's absorbed by my > >> body. > >> >> > >> >> But HEY - guess what? Next time my "normal" voice starts > >> fading > >> >> away to a breathy whisper I'll have not one option, but > TWO. > >> >> Yup folks... TWO, as in 1-collagen injections lasting 3 to 6 > >> >> months, or, 2- a long-term ("long-term," as in as long as > the > >> PD > >> >> stays slow moving as it's been for almost 25 years) tiny, > >> >> man-made, hammer-shaped thingee implanted into my vocal > cords > >> via > >> >> the passage thru the thyroid capsule (inserted right THRU > the > >> >> capsule AROUND and/or past the thyroid). > >> >> > >> >> The tiny "thingee (has a long medical name which I can't > >> recall, > >> >> but I'll get it from Dr, Burke tomorrow and List-post it) > >> >> procedure accomplished in a 1/2 hour operation in the > doctor's > >> >> office and has been performed on folks with vocal cord > problems > >> >> for about 10 years or more, according to Dr, Burke and also > by > >> >> many other neck and throat specialists all over the world. > >> >> > >> >> Only recently has this type of surgery been done on Parkies, > >> and > >> >> WHICH Parkie gets it is decided by their own neck and throat > >> >> specialist/surgeon, based upon their PD being rather slow > >> moving > >> >> (as in slowly degenerating rather than swiftly moving). I'm > >> not > >> >> too sure what constitutes "slowly moving" to the DOCTOR, but > to > >> ME > >> >> that means the vocal cords are stable enough to permit the > >> "tiny > >> >> thingee" to remain implanted for at LEAST a year or longer > >> before > >> >> needing to be replaced by a new one cut to fit the changing > >> vocal > >> >> cords. > >> >> > >> >> Since I won't be a candidate for this procedure till the > >> collagen > >> >> which I got today is absorbed by my body (3 to 6 months), > >> >> obviously I cannot share more about this surgery till I've > had > >> it. > >> >> But since it's apparently so well known by neck and throat > >> >> specialists, if you'd like to know more about it (like > cost - > >> >> Medicare covers it, by the way), I suggest ya call the > nearest > >> >> teaching hospital/university and ask for their neck and > throat > >> >> clinic... They 'll no doubt be able to fill ya in on this > >> >> relatively minor operation. > >> >> > >> >> OH.... and ya might hear some MD's saying this surgery ISN'T > >> for > >> >> PWP's, but Dr. Burke SWEARS it CAN be successful when > performed > >> on > >> >> a Parkie, provided the doctor makes sure BEFORE the > operation > >> that > >> >> the patient's PD is indeed slowly to degenerate. > >> >> > >> >> (NON-proofed for errors or typos) > >> >> > >> >> Barb Mallut (written in haste, 'cause I'm awfully tired now) > >> >> [log in to unmask] > >> >> > >> > > >> > > >