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Dear Billie, You're right, this is a trip through uncharted waters, and you are very courageous to make the decision you did. And you will win this fight, in fact you already have! I hope you'll be in that motor home very soon, on the way to some great fishing and beachcombing. Thank you for letting us know how you're doing, and please continue to keep us informed as you feel up for it -- we care very much about you. My very best regards, Kathrynne Billie Cook wrote: > > me thinks I've started a trip thru unchartered waters, so will have to > sink or swim. it was a very difficult decision to make but someway, > somehow I'm not ready to give up the fight, not now > > got to hospital early in order to have some documents notarized. this > didn't take as long as thought it would so got back to day surgery and > was ready to go by 11:15 but wasn't scheduled tul 12:30 but a slot > opened up, dr scurried over and it all began. He had told us the > procedure would take about 30 mins., about an hour in recovery and > probably go home 4 or 5 hrs. later. But it didn't happen that way > > he took about an hour to do it, spent about 2 hrs in recovery and at > some time during this he decided they'd keep me overnight. got nestled > in that comfortable(LOL) bed, hooked to IV, morphine every 3 hours and > only ice chips (no water). If you don't mind I'll pass on the morphine. > about 12:45 Tues. got my first dose of Jevity and everything seemed to > be ok. > dr came in about 3:45 took a look at his handiwork and said I don't like > that dimpling so proceded to yank on disc telling me now this might hurt > you're durn tootin it did) then he took the tube and turned it round and > round and said this is what you should do everyday. Then he said he'd > let me come home so got home about 4:45 (didn't tarry after he said I > could go) sore, tired, weak with mucho back pain. > Home Health nurse was out this morning to get ball rolling; gave Bacel > instructions on how to do it and a check list to do everyday,i.e. > weight, temp and blood pressure (today had lost 4 more lbs for a total > of 43 in last 3 mos). She'll be back tomorrow, Friday and Sat. then will > go to every other day for however long insurance will allow. also wants > me to have PT,possibly a wheelchair and evaluation on swallowing > problem. > Alan got a 20 tube and also am on Jevity > 4-6 cans per day. > Am very weak and even more unstable on my feet and shuffle along. > Sorry this got so long but so many of you were interested to know how it > went. So far so good, have alittle drainage tonight which haven't had > so will ask nurse tomorrow. Bacel is really trying to take good care > of me and just asap we'll fire up motorhome and head for gulf coast to > scavenge seashore,fish, etc. "nuff for now. > Billie > > PS--thanks for being my family and for caring. -- Kathrynne Holden, MS, RD Medical nutrition therapy Author: "Eat well, stay well with Parkinson's disease" "Parkinson's disease: assessing and managing unique nutrition needs" http://www.nutritionucanlivewith.com/