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My mother had a right-sided pallidotomy about a month ago. Her worse symptom was (and still is but not as severe anymore) rigidity. During "on" time she had bradykinesia and some rigidity. During "off" times she was so stiff and rigid that if the house were to catch fire she would be unable to move to save herself. Her dyskenisias were not a major problem although she always had them about 15 minutes after taking her Sinemet. The pallidotomy greatly decreased the rigidity on her right side of her body. She is scheduled for a left-sided pallidotomy in October and she can hardly wait. Teresa, Daughter of Mama (57/43/38) -----Original Message----- From: Parkinson's Information Exchange [mailto:[log in to unmask]]On Behalf Of Ivan M Suzman Sent: Thursday, June 24, 1999 9:48 PM To: [log in to unmask] Subject: Re: 3rd opinion Dr. Growdon said that I'm too well for surgery. Despite all that we told him about my symptoms, we both (Michael, a personal care attendant and I) were perplexed by this 3rd opinion. He said that pallidotomy is "out of the question" because it is primarily for those with dyskinesias. He said that DBS is for "tremor control." My problem- stiffness and severe offs, seemed to be not enough for him to recommend surgery. He suggeseted contacting the European doctors because they are more experienced Perplexed, Ivan and Michael On Thu, 24 Jun 1999 11:03:33 -0400 Ivan M Suzman <[log in to unmask]> writes: >^^^^^^ WARM GREETINGS FROM ^^^^^^^^^^^^ :-) > Ivan Suzman 49/39/36 [log in to unmask] :-) > Portland, Maine land of lighthouses 85 deg. F :-) >******************************************************************** >This evening at 5:00 I am going to be seen for the first time by Dr. >Growden at Mass. General Hospital. I am looking forward to it. If any >of his patients would like to talk to me on- or off-list, I would >appreciate knowing your feelings about him as your physician. >Although Tasmar has been helping me noticeably, I still have deep >off-periods (although shorter and less frequent), and severe >hypothermia. It is difficult to decide what to do. > >Boston Univ, has asked me to please consider a left-sided >pallidotomy, >but Rhode Island Hospital has said no, rather consider a bilateral >DBS. > >So I need a 3rd opinion. > >I'm on Medicaid. > > >Ivan :-) ^^^^^^ WARM GREETINGS FROM ^^^^^^^^^^^^ :-) Ivan Suzman 49/39/36 [log in to unmask] :-) Portland, Maine land of lighthouses deg. F :-) ********************************************************************