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If you are nervous about brain surgery and do not know what the procedure
entails I would suggest reading:
http://neurosurgery.mgh.harvard.edu/pallidt.htm the pallidotomy info is
about halfway through this page.  And, also,
http://axonet.com/FN_Neurosurgery.html this one is an easier read.

My mother had a pallidotomy for her right side about a month ago.  She is so
happy with the results that she is anxious for the second pallidotomy but
the neurosurgeon told her she was going to have to wait several months.

My mother was in such bad shape prior to the surgery that she was ready to
die if she could not have the surgery.  Medications hardly worked for her.
She refused to go with any other form of surgery like the stimulators.  She
was more afraid of the electrode left in her brain than a permanent hole.
(Go figure.)  But, fortunately, so far so good.

With everybody else's input I'm sure it must be confusing and frustrating
but the best thing you can do is educate yourself as much as possible.

Teresa, Daughter of Mama (57/43/38)

-----Original Message-----
From: Parkinson's Information Exchange
[mailto:[log in to unmask]]On Behalf Of Philip Connors
Sent: Saturday, June 26, 1999 12:03 PM
To: [log in to unmask]
Subject: Pallidotomy or Tasmar ????


Carol, my wife of almost 40 years, faces a very difficult decission and I
sollict your input.
I have been mostly, but not exclusively, lurking from the inception of this
List.  I have learned more about PD than I ever wanted to know, but also
many
useful things also as my wife, Carol's PD progressed.  Again I ask for some
timely input.  (ASAP as u will c below.)
Quick Background:  Carol is 62, basically good health, X-cpt for...
She is a young onset, symptoms mid to late 40's.  Always a very active,
driven person.  We live in rural New England town, 3,500 popul. near
Worcester, but with no public transportation.  She has her driver's license,
but has stopped driving.

Her main problems are Freezing, OFF periods, and dyskinesia.  We live in a
125 year old Victorian 3 story house in the center of the town.
The most serious thing facing us is that Carol's neurologists suggested that
she see the MGH surgeon, Dr. Reese Cosgrove, and he strongly suggests a
pallidotomy.  (It would be done in the Fall.)  It will be her decision and
it
is not clear or easy.  (I ask that anyone who feels that they can contribute
or constructively kibitz to do so as we prepare for next TUESDAY's app't
with
her neuro at Fallon HP.)
An interesting spin occurred when Carol & I visited my sleep apnea doctor, a
neuro, and when we were discussing things in my life that could cause stress
- Carol's situation, including the potential pallidotomy, came up.  He asked
if we had considered Tasmar and when we said that we had and Carol had used
it, but her neuro had taken her off it when the liver damage fatalities had
come up.  He said fine compared to another drug, but now we were comparing
the Tasmar risk (which has apparently not continued with many patients using
it under close liver function monitoring) to BRAIN SURGERY.  He then backed
off and said that he did not want too interfere in some other DR's area, but
suggested that we rethink it and discuss it (the possibility of restarting
Tasmar) with Carol's local (15 years) neuro who we are seeing next week.