hi, the broadcast will be next week some time it is a ever good intervew
and she does't want to make need mass up on the interview ok .Ivan ask me
to put this on the internet.
thank you
his pca mike bye
On Tue, 29 Jun 1999 17:31:39 -0400 Ivan M Suzman <[log in to unmask]>
writes:
>TV INTERVIEW NOTES for all on the PIEN List:
>
> PWP and CG's swaying to LOUD GOSPEL MUSIC .......
>
>Thanks to someone very special up there, I made it through the
>interview. The gospel
>tape from the Turtle Creek Chorale and the Hamilton Park Baptist
>Church , of Dallas, Texas is CRANKED to VERY,VERY loud, and , here are
>my thoughts for you all:
>
>The interview was great- I went into the yard, showed my grapes and
>then, up the
>double-railed stairs, into the house, showed the wheelchair-accessible
>bathroom, showed the PIEN, with Edie Luther's message ON the screen,
>showed pictures of Maryhelen
>and Manuel Davila, Camilla, the Lima Ohio support group of Don and
>Vivian McKinley, a letter from the Muhammad Ali office to me.
>
>Talked for 90 minutes!! Jennifer asked many, many questions. She
>covered the Udall funding fight, the lack of movement disorder clinics
>in Maine, NH, Vermont, and nearby
>Canada.
>
>We talked about access to specialists, the issues ofquality of life
>for families facing PD, the reasons why I believe I will need surgery,
>the lack of money for caregivers that prevents me from having a stable
>home life, especially, the low wage and partial funding for enough
>coverage to feel completely safe to risk surgery.
>
>I went OFF on-camera!! Tremors, had to take pills on camera, even had
>to drink OJ
>with a bent straw-hands became too weak to hold a cup with a large
>handle.
>
>I feel tired but exhilarated. A once-in-alifetime dream. Let's hope
>others get such
>opportunities to go PUBLIC. I am smiling!!
>
>Got to rest before dinner. Hoping anyone out there who can videotape
>WPXT-TV,Channel 51 on UHF, or 12 Cable, will do so.
>
>Jennifer's cameraman, John were sporting big smiles at the end- she
>ate one of
>my fresh-picked GARDEN strawberries that I picked this morning, on
>camera , and received a THANK YOU card from me, thanking her for
>providing the honor to me to VISIBLY represent PWP's, to close the
>interview.
>
>However she mixes and edits the interview tape- it is a winner.
>
>Maybe I'll be able to get copies!
>
>
>Ivan
>WHEW!!! :-) :-)
>
>On Tue, 29 Jun 1999 15:16:11 -0400 Camilla Flintermann
><[log in to unmask]> writes:
>>Ivan I just got back from bringing Peter home from hospital--I can
>>only
>>stress what I expect you will say--that PD is different for each
>PWP,
>>that
>>$$$$for research are needed, that not all PWPs are senior citizens,
>>and
>>that it affects the whole person, head-to-toe, far beyond any
>visible
>>effects such as tremor or masked face. I would also make the point
>>that it
>>affects the whole family and comminuty as a result---good
>luck--sorry
>>no
>>more time.
>>
>>Camilla Flintermann, CG for Peter 81/70/55
>>Oxford, Ohio
>>http://www.newcountry.nu/pd/members/camilla/one.htm
>><[log in to unmask]>
>>
>> "Ask me about the CARE list for
>> Caregivers of Parkinsonians ! "
>
>^^^^^^ WARM GREETINGS FROM ^^^^^^^^^^^^ :-)
> Ivan Suzman 49/39/36 [log in to unmask] :-)
> Portland, Maine land of lighthouses 74 thunderstorms deg.
>F :-)
>********************************************************************
^^^^^^ WARM GREETINGS FROM ^^^^^^^^^^^^ :-)
Ivan Suzman 49/39/36 [log in to unmask] :-)
Portland, Maine land of lighthouses deg. F :-)
********************************************************************
