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You also have a right to a second opinion if the regular neurologist is unavailable. Preferrably from someone who specializes in PWP, or is at the least certified. -----Original Message----- From: janet paterson <[log in to unmask]>; [log in to unmask] <[log in to unmask]> To: [log in to unmask] <[log in to unmask]> Date: Friday, June 25, 1999 9:33 PM Subject: Re: FW: Parkinson Info. >hi all > >At 20:11 1999/06/25 -0400, teresa wrote: >>Can anyone help answer this man's questions? >> >>Teresa, Daughter of Mama (57/43/38) >> >>-----Original Message----- >>From: Bandekar, Raj (PA62) [mailto:[log in to unmask]] >>Sent: Wednesday, June 23, 1999 12:10 PM >>To: [log in to unmask] >>Subject: Parkinson Info. >> >> >>Teresa, >> >>Here I am again trying to get some information on Parkinson Disease. >>Thanks for all the help that you extended earlier. Could you please post >>these questions/scenarios on my behalf to the "large email group" that >>you belong to. >> >>My father age 77, is suffering from Parkinsons disease for last 9 years. >>He has been on Syndopa (a.k.a levadopa), eldepryl and pacetone drugs. >>His Parkinsons was under control till about past 6 months. It has been >>very severe for the past month. In fact he is in the hospital currently. >>It all started when he got flu 2 months back and then developed lung >>infection into pnuemonia. The pnuemonia is under control but his >>Parkinson has increased severely. Also recently in the past month or so >>the doctors had introduced Bromocryptine which is an agonist. I >>understand it is not the latest and there are other drugs such as >>ropinerole or pramipexole or Mirapex. Could some body answer the >>following questions? >> >>1) At this stage of Parkinson his body has become very rigid. He cannot >>walk out of bed. Also he is unable to intake food naturally due to >>rigidity of muscles in the throat. He has to be fed via nasal path. We >>think that due to pnuemonia Parkinson might have been aggravated. Could >>Parkinson affect throat muscles? His doctor assures us that he has hopes >>to improvise the situation so that he may be able to take food normally >>and walk again. >>2) Are these new drugs better (ropinerole or pramipexole or Mirapex). If >>so where can I find information about these. I am looking for specific >>infomation about therapy, dosage, checmical constituents etc. on these >>drugs. >> >>I would really appreciate any help. >> >>Thanks a lot. >> >>Raj Bandekar. >> > >hi raj > >the key words in your message, for me, are: > >>His Parkinsons was under control till about past 6 months. It has been >>very severe for the past month. In fact he is in the hospital currently. >>It all started when he got flu 2 months back and then developed lung >>infection into pnuemonia. The pnuemonia is under control but his >>Parkinson has increased severely. Also recently in the past month or so >>the doctors had introduced Bromocryptine which is an agonist. ... > >is he taking the same amount of levodopa now as he was 6 months ago? > >are the doctors who introduced bromocryptine the same doctors who >prescribed your fathers' medications six months ago? > >i advocate getting him back to his med routine >when the pd was most under control >to see how he responds to that routine now > >'playing around' with new meds, trying this and trying that >is a recipe for tragedy >do not allow it > >your father's pd was under control >and then he became seriously ill and was hospitalized > >even if his illness is cured >he still needs to recover from the stresses involved > >the pd may slow that recovery >but brain chemistry is not something to be rushed > >please read 'joe's story' in the PIEnet section of my website >[url below] > >janet > >janet paterson >52 now / 41 dx / 37 onset >PO Box 171 Almonte Ontario K0A 1A0 Canada >a new voice http://www.geocities.com/SoHo/Village/6263/ >[log in to unmask]