oh ivan the sun is shining here in our mountains and it has to shining on you today.you will never know how often i think of you and pray that you will get whatever you need to go on spreading cheer and hope all goes well with your future. best wishes connie ps i wish i could send you the 4th of july fireworks greeting card but you cant get them so no can do -----Original Message----- From: Ivan M Suzman <[log in to unmask]> To: [log in to unmask] <[log in to unmask]> Date: Tuesday, June 29, 1999 9:41 PM Subject: Re: WPXT-TV interview and broadcast TODAY for PWP:SUCCESS! >TV INTERVIEW NOTES for all on the PIEN List: > > PWP and CG's swaying to LOUD GOSPEL MUSIC ....... > >Thanks to someone very special up there, I made it through the interview. > The gospel >tape from the Turtle Creek Chorale and the Hamilton Park Baptist Church , >of Dallas, Texas is CRANKED to VERY,VERY loud, and , here are my thoughts >for you all: > >The interview was great- I went into the yard, showed my grapes and then, >up the >double-railed stairs, into the house, showed the wheelchair-accessible >bathroom, showed the PIEN, with Edie Luther's message ON the screen, >showed pictures of Maryhelen >and Manuel Davila, Camilla, the Lima Ohio support group of Don and Vivian >McKinley, a letter from the Muhammad Ali office to me. > >Talked for 90 minutes!! Jennifer asked many, many questions. She covered >the Udall funding fight, the lack of movement disorder clinics in Maine, >NH, Vermont, and nearby >Canada. > >We talked about access to specialists, the issues ofquality of life for >families facing PD, the reasons why I believe I will need surgery, the >lack of money for caregivers that prevents me from having a stable home >life, especially, the low wage and partial funding for enough coverage to >feel completely safe to risk surgery. > >I went OFF on-camera!! Tremors, had to take pills on camera, even had to >drink OJ >with a bent straw-hands became too weak to hold a cup with a large >handle. > >I feel tired but exhilarated. A once-in-alifetime dream. Let's hope >others get such >opportunities to go PUBLIC. I am smiling!! > >Got to rest before dinner. Hoping anyone out there who can videotape >WPXT-TV,Channel 51 on UHF, or 12 Cable, will do so. > >Jennifer's cameraman, John were sporting big smiles at the end- she ate >one of >my fresh-picked GARDEN strawberries that I picked this morning, on >camera , and received a THANK YOU card from me, thanking her for >providing the honor to me to VISIBLY represent PWP's, to close the >interview. > >However she mixes and edits the interview tape- it is a winner. > >Maybe I'll be able to get copies! > > >Ivan >WHEW!!! :-) :-) > >On Tue, 29 Jun 1999 15:16:11 -0400 Camilla Flintermann ><[log in to unmask]> writes: >>Ivan I just got back from bringing Peter home from hospital--I can >>only >>stress what I expect you will say--that PD is different for each PWP, >>that >>$$$$for research are needed, that not all PWPs are senior citizens, >>and >>that it affects the whole person, head-to-toe, far beyond any visible >>effects such as tremor or masked face. I would also make the point >>that it >>affects the whole family and comminuty as a result---good luck--sorry >>no >>more time. >> >>Camilla Flintermann, CG for Peter 81/70/55 >>Oxford, Ohio >>http://www.newcountry.nu/pd/members/camilla/one.htm >><[log in to unmask]> >> >> "Ask me about the CARE list for >> Caregivers of Parkinsonians ! " > >^^^^^^ WARM GREETINGS FROM ^^^^^^^^^^^^ :-) > Ivan Suzman 49/39/36 [log in to unmask] :-) > Portland, Maine land of lighthouses 74 thunderstorms deg. F > :-) >******************************************************************** >