Print

Print


Janet, et al....

I've heard several different movement disorder specialists speak
over the past 5 years and a number of them have suggested if one's
having bad side effects from their Sinemet to pop the tablet (or
1/2 tablet) under their tongue, let it "melt there," and then
swollow.

Tho I've never taken my daily Sinemet that way, I know a few PWPs
who will ONLY ingest it by "melting" it first 'cause they have -
like yourself - a MUCH more beneficial response that way,

Barb Mallut
[log in to unmask]

----Original Message-----
From: janet paterson <[log in to unmask]>
To: [log in to unmask] <[log in to unmask]>
Date: Tuesday, July 06, 1999 7:03 PM
Subject: cure / good med management / melting sinemet cr


>hi all
>
>there's been a lot of discussion
>about finding and funding the Cure lately
>
>there was a post recently
>about someone who's managed pd quite well for 25 years
>
>i've had pd for 14-15 years
>i've been on sinemet for 11 years
>and i've discovered something new about my med 'management'
>
>i have avoided sinemet cr like the plague
>because it tends to give me dyskinesia and dyspepsia
>[not a pretty sight]
>
>i have generally stuck to
>half 10/100 sinemets every 90 minutes or so
>and have had generally good 'coverage' as a result
>the only real flaw in the ointment seemed to be eating food [!]
>
>for some unknown reason a couple of weeks ago
>i decided to try 'melting' a half 25/100 sinemet cr in my mouth
>rather than swallowing it whole
>[i didn't care about the time-release factors being wasted]
>
>has anyone else tried this approach with cr?
>
>i'm quite pleased and surprised by the results so far
>
>i have pretty much replaced
>about half of my daily sinemet with sinemet cr
>
>no dyskinesia and no dyspepsia
>hah!
>
>and a trace of the time release capability seems to be still
available
>since my "ons" and "offs" are 'gentler' and slower now
>hah!
>
>and having something to eat does not seem to interfere
>with the subsequent dose as much
>hah!
>
>right now i am enjoying a long smooth "on"
>the best in months or even a year or two
>slightly twitchy toes is all
>virtually identical to
>pre-pd
>
>it just occured to me
>if the cure isn't found for a few years
>good med and symptom management is as good as being there
>
>and is as much of a miracle as a cure would be
>imho
>
>
>janet
>
>janet paterson
>52 now / 41 dx / 37 onset
>snail-mail: PO Box 171  Almonte  Ontario  K0A 1A0  Canada
>website: a new voice
<http://www.geocities.com/SoHo/Village/6263/>
>e-mail: <[log in to unmask]>