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I'd like to thank everyone who responded to my inquiries about Amantadine.
I have had  Parkinson's Disease for  seven years now and it has become very
severe the last two years.  I have  tried all the medications that is on the
market and nothing works.  I am now just on Sinemet CR 200x50 and Sinemet
100x25, one fives times a day.  And I have just started taking the
Amantadine, taking it 3 times a day.  sometimes it works and sometimes it
doesn't seem to work.  I have severe dystonia.  My feet, head, and neck
twist to the left.  My whole body freezes and I have severe cramps.  I have
severe neck and back pain also.  I'm on morphine and tylenol #3 and Ativan
too.  I don't know what to do anymore.  My doctors tell me that Palladotomy
is not suitable for me because it only helps people with their tremors.

-----Original Message-----
From: Hilary Blue <[log in to unmask]>
To: Kim Lee <[log in to unmask]>
Date: July 4, 1999 1:47 AM
Subject: Re: Amantadine meds


>Hi
>If you check the archives you will see that i have written quite alot about
>amantadine because i regard it as a miracle drug. But it does have side
>effects.
>Some peop;e call it the serendipidy drug - because its discovery was  quite
>fortuitous. Some time back in the 50s or the 60s, in a n old-aged home in
>Dngland, there was a flu epidemic.Amantadinie ws then the drug of choice to
>treat flu. Imagine the doctor's surprise when he discovered that those of
his
>fapients with pd not only were cured of thhe flu, but their PD symmptoms
had
>considerably lessened.
>btw, amantadine is also known as symmetrol. I w as given that when i was
first
>diagnosed 17 years ago. It didnt w ork.And i was pt on sinemet, which did.
T
>hen a  couplr of yea rs lat er I cazme to the sta tes, and the neurologist
put
>me on parlodel and amantadine.  At the same time. So now i cannot tell you
for
>sure which medicti on ha d which side effect.  My legs swelled up
enormously,
>i deveooped Reynauds ty pe symptoms  particularly my extreities woould lose
>all feeling in the cold, and turn bright red. And i develooped a networking
of
>veins over my legs. I changed doctors and the new neurologist took me of
>amantadikne and parlodel and gaver me eldepryl - just out the market-
>and all the side effects disappeared. And over the ensuing yea  rs, i had
>various antagonist - now mir apex - to add to the sinemet.
>About a year ago, my dyskinesia had becime so bad that my doctor had told
me
>that i was at the end of the road  wit meedic a tion, and that she felt
>surgery was the only route ro follow. We got as far as planning the tr ip
to
>New York - and then i saw something about amantadine on the net - someone
had
>start ed using it agoin, and it relieved his dyskinesia. I asked my doctor
if
>i cold give it t ty. and here iam,
>
>> Kim Lee wrote:
>>
>> I've just started on new medication.  Its name is amantadine.  I am
>> writing to inquire if anybody has taken this medication before and
>> what kind of side effects you have experienced as a result of taking
>> this medication.  Also, I would like any information about the drug
>> anyone can give.
>>
>> Kim Lee
>> [log in to unmask]
>