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Listmembers- I wanted to point out the value of the list once again and thank Steve and Paul Fahr- fellow list members who I had corresponded with off list regarding STN stimulation and who was my surgeon's first STN patient- who came to my assistance. After the last adjustment of my STN stimulators about 2 weeks ago all the wonderful progress that I had written about went to hell (which Steve had warned me about). Over a period of about 4-5 days I went from being dykinetic to the dyskinesia stopping for an extended period but being unable to get a significant response from sinemet or any other drug. I went from dyskinesia to an extended off time which lasted about a week. I needed to go back to Chicago to readjust the stimulator but for a variety of reasons would have been unable to do it until next Tuesday. Then enter the angels of mercy Steve and Paul. On Monday Paul called and told me that he and Steve were scheduled to go to see their doctor and offered to take me to Chicago along to Steve's appointment. Their last appointment in Chicago was on my day of surgery and they had spent a couple of hours with my family in the surgical waiting room- also much appreciated. But in spite of exchanging email and talking with each other on the phone we had never met. We agreed to meet in Rockford- they live on a farm about an hour west and I live near Madison WI an hour North. My son was able to drive me to Rockford and a friend could pick me up. I met these men for the first time in a Burger King Parking lot in Rockford. I called from the car to tell the nurse who adjusts the STN stimulator that I was coming hoping that I could be worked in. When we got to Chicago after about an hours wait I saw the nurse and we decided what we had done wrong last time and how to fix it and within about 15 minutes I went ON for the first time in 10 days or so. I write this both to give public thanks to Steve and Paul and also to point out the value of list members to each other. Giving that kind of support to fellow listmembers in need- and believe me I was in need at the time- is what this list is all about. Thank you Steve and Paul and once again thank you list. Charlie. -- ****************************************************************************************** Charles T. Meyer, M.D. Middleton (Madison), Wisconsin [log in to unmask] ******************************************************************************************