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Ivan.... Many thanks for your continued eloquent, creative, and gutsy, battle to get as much information about PD and those of us who live with the misery of the disease into the public venue. Ivan, m'dear... you never cease to amaze me - in a very positive way! (tipping virtual hat at ya) Barb Mallut [log in to unmask] -----Original Message----- From: Ivan M Suzman <[log in to unmask]> To: [log in to unmask] <[log in to unmask]> Date: Thursday, July 08, 1999 9:00 PM Subject: Re: Ivan on television >Dear CYBERFAMILY: > >Please try to accept this not as bragging but as the truth as I >experienced it. > >I can only say that seeing the 30-minute, "Forum 2000" show today, on >TV, has been a MAJOR event in my life.. Two personal care attendants and >I saw it together . Another drove across town, to tell me how >"outstanding" I was for all 30 minutes. A fourth one called to tell me >that her boyfriend and she both think I was amazing. > >I still feel so grateful that I held together for the entire taping >session at WPME-TV. > >I had an intensity and a smile ,and a mental acuity, that persevered >throughout the entire >show. I was shocked to see myself with shoulders rolling in dyskinesia, >hands and >fingers tapping on wiggling legs. I was shocked to see how much I've >aged. I was completely composed during the interview, but at home, >watching it, I was VERY emotional. > >The host even asked me how I could still be courageous, since I have >deteriorated so much! The thought of "deteriorating" REALLY hit hard. > >The show ended, and I burst into tears. At the same time, I was >screaming, "it took me fourteen years of fighting this horrible disease >to FINALLY to get on TV alone, and be interviewed! Thank God I got this > done!" > >I do not have a videotape yet. I hope someone out there saw it. I >called Fox TV in >New York (212) 301-3000, and an editor named Dario (he only gave me his >last name) told me that he would call Portland's WPME for a copy. He >would let Todd Ciganek know that I would be very grateful if it could be >used for national broadcast. > > >Please push for this. The tape is absolutely incredible. I am still >amazed that this all happened so fast, and with such superb results. > >I talked about stem cells, Udall, sleep deprivation, protein blockage, >needing help, bering hit from all angles, but still seeing my life as an >opportunity to help others. Forgive me, but this is a "DYNAMITE" >videotape that MUST be seen. > >God Bless, > >Ivan :-) > > >On Thu, 8 Jul 1999 16:52:19 -0400 Hilary Blue <[log in to unmask]> writes: >>Did anybody see Ivan Suzman on television today? >> >>I live outside the viewing area, but i'd be interested to hear from >>those of >>you who saw it, what you thought, and how it came across. >> >>So, how about letting us all know? >> >>Hilary Blue > >^^^^^^ WARM GREETINGS FROM ^^^^^^^^^^^^ :-) > Ivan Suzman 49/39/36 [log in to unmask] :-) > Portland, Maine land of lighthouses deg. F :-) >***************************************************************** ***