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At 20:47 1999/07/11 -0700, Carole wrote:
>Can anyone tell me Joan Snyder's phone number?  I think she also goes by
>Jess???  My husband went back there for a support get-together and
>unfortunately had to be hospitalized.  The neurologist thinks its either
>a reaction to the combo of Tasmar/Mirapex or an overmedication with
>Tasmar.  It is frightening being 2,000 miles away.  I fly back there on
>Tuesday.  I've spoken with several people back there at the meeting who
>are staying in the motel but none of them could find Joan's phone
>number.  I'm a bit overwhelmed at the moment and could use some moral
>support if nothing else.  They had to admit him to the psych ward
>because of the extreme agitation, flailing, etc.  That's scary too. The
>neuro took him completely off Tasmar cold turkey and they are checking
>his liver function which was somewhat out of the normal range.  He is
>lucid and oriented although a little disoriented (Ted not the neuro!!!)
>and still a bit agitated.  And emotionally very fragile right now.  They
>have him on a mild dosage of Mellaril.  I notice that this is on the
>contraindicated list for PWP's at high dosages and this concerns me too.
> Anyway, Carol gave Joan my number and hopefully she will call me soon,
>but I would feel so much better if I had hers and was in contact with
>someone back there.  I understand she is a super person to help with
>things.  Can anyone help me out?
>Overwhelmed in California,
>Carole M.

Carole,

i am sure that others will help you with joan's phone number.

my next postings will be copies of the official tasmar warnings
from Hoffman-LaRoche and the FDA

based on what you've told us,
the neuro is the one who sounds a little disoriented

i feel strongly that another opinion is urgent
considering the contraindicated med and the cold-turkey tasmar situation

my thoughts and heart are with you

janet

janet paterson
52 now / 41 dx / 37 onset
snail-mail: PO Box 171  Almonte  Ontario  K0A 1A0  Canada
website: a new voice <http://www.geocities.com/SoHo/Village/6263/>
e-mail: <[log in to unmask]>