 |
 |
hi all At 15:41 1999/07/12 -0700, carole wrote: >I want to thank all of you on this listserve for your kind responses. I >feel I should give you an update although I know that most of you know >about this kind of treatment much better than I do because you have >experienced it first hand. some of us have but anyone connected with pd need to know this stuff period >I just talked to my husband's neuro here. I had dropped off the >information that Janet Patterson so kindly sent to the list and informed >him that Ted was in the hospital. He told me that perhaps it was >something Ted did differently back there in Illinois like "something he >ate." I kid you not. I find this a little bit alarming coming from a >"trained" neurologist. At this point I was so flabberghasted that I >felt like crawling through the phone. Then he informed me that he saw >him just two weeks ago and he was "fine." They didn't change anything. i thought the new neuro in the hospital in illinois took ted off tasmar 'cold-turkey'? did ted's 'old' neuro not comment on this and the dangers inherent? [the whole point of the information i sent you] >Well, he saw him for 15 minutes (if that much). I see him 24 hours a >day (more or less). I've seen this coming on for awhile in fits and >spurts. He is not fine, believe me. Although he is still well >oriented, he is hyper and agitated. Definitely not himself. Even his >speech patterns are revved up which is about all I can judge over the >phone. Sadly, all I could hear on the other end of the phone with the >neuro was "don't blame me; I didn't do anything wrong." I'm not trying >to blame anyone. That is sort of pointless at this point in time. I am >just trying to get the problem resolved. I'm not a trained neurologist >but it escapes me how when you have someone with a diagnosis of >Parkinson's which slows down activity and you see them exhibiting the >exact opposite all of a sudden plus he is on a fairly good dosage of >Sinemet CR 50/200 t.i.d. and has been on Mirapex t.i.d. for a year and >on Tasmar t.i.d. for six months, that you wouldn't look at the >medications FIRST rather than assuming that a person needs psychiatric >care. I mean look at the obvious FIRST. I don't think you have to be a >trained anything to figure that out. yes!!! the worry is not just that med-induced psychosis symptoms are mis-read but that the tasmar withdrawal can produce side effects like malignant neuroleptic syndrome which can be fatal period any doc who recommends such a course of action should be up for malpractice imho thanks for the update janet brief note long 'off' Hormonezzzzgggggrrrrr janet paterson 52 now / 41 dx / 37 onset snail-mail: PO Box 171 Almonte Ontario K0A 1A0 Canada website: a new voice <http://www.geocities.com/SoHo/Village/6263/> e-mail: <[log in to unmask]>