For SANDI and other newcomers---Please note:
With a number of new members, who have lots of questions, it is time to
send the following post again,which has been revised and updated---I'm not
sure if I did post the revised version , so if this is a duplicate, "mea
culpa", but do throw out the OLD one (which does not include janet's and Art's
websites) !
:
################
Here is a partial list of useful addresses,including some internet sites,
culled from various sources:
* janet paterson's website--general information and many good links
http://www.geocities.com/SoHo/Village/6263/
* Art Hirsch's website--lots of good links.
http://www.fortunecity.com/meltingpot/farley/817/blynx.html
* The easy way to find a MOVEMENT DISORDER SPECIALIST is to dial
1-888-400-2732. This toll free number will ring in the American Parkinson
Disease Association Information & Referral Center.
*National Family Caregivers Association: (301)942 6430 or 1 -800 -896 -3650
Memberships are $20. yr. for individuals and includes such things as:
Take Care", an informative mewsletter with advice and resources
CG-to-CG Peer Support Network, to help CG members find a friend in similar
circumstances
"The Resourceful Caregiver", a resource guide filled with information other
advocacy and awareness -raising activities
Costs are in US currency, and Canada residents are asked to include an
extra $12. for postage
A call to the 800# will get you a useful FREE packet of information.
* Addresses for national PD organizations in the USA:
American Parkinson Disease Assn.(APDA)
60 Bay St.,Staten Island, NY 10301
(800) 223-2732
http://www.apdaparkinson.com/ (includes directory of support groups)
and http://www.apdaparkinson.com/index.htm (good info re: Congress)
Fax: (718) 981-4399
E-mail: [log in to unmask]
*********
National Parkinson Fndtn.,Inc.
1501 N.W. Ninth Ave. , Bob Hope Road, Miami,FL 33136-1494
(800) 327-4545 e-mail: [log in to unmask] Fax:
305 548-4403
http://www.parkinson.org
*********
Parkinson's Action Network - PAN
Website: http://www.sonic.net/~pan/
Address: 818 Suite C College Avenue
Santa Rosa, CA 95404
Phone: (707) 544-1994 or (800) 850-4726 Fax: (707) 544-236
E-mail: [log in to unmask]
OR
Capitol area office:
1001 Pennsylvania Avenue, Suite 850 North, Washington, DC 20004
Phone: (202) 628-2079 Fax: (202) 737-4242
E-mail: [log in to unmask]
A nationwide advocacy organization
*************
Parkinson's Disease Foundation - PDF
Website: http://www.pdf.org
Address: 710 West 168th St. Third floor - New York, NY 10032-9982
Phone: 212-923-4700 or 800-457-6676 Fax: 212-923-4778
E-mail: [log in to unmask]
OR
Midwest office:
833 West Washington Blvd., Chicago, IL 60607
Phone: 312-733-1893
* National Institute of Health Research News Parkinson's Disease
http://www.nhgri.nih.gov/DIR/LGDR/PARK2/
* Awakenings
http://www.parkinsonsdisease.com/ (open forum)
* The neuro website at harvard is an excellent resource:
http://neuro-chief-e.mgh.harvard.edu/parkinsonsweb/Main/pdmain.html#mainmenu
a psychosocial article is there along with an algorithm on managing pd
and some excerpts from the young parkinson's handbook and
a caregiver's handbook
*********
Parkinson's Institute
Website: http://www.parkinsonsinstitute.org/index.html
Address: 1170 Morse Avenue, Sunnyvale, CA 94089
Phone: 408-734-2800 or 800-655-2273 (Canada) or 800-786-2978 (US) Fax:
408-734-8522
E-mail: [log in to unmask]
An independent, not-for-profit organization conducting patient care and
research activities in the
neurological specialty area of movement disorders.
************
United Parkinson's Foundation
NOW MERGED WITH THE PARKINSON DISEASE FNDTN.
***********
* National Assn. for Incontinence, PO Box 8310, Spartanburg,SC 29305-8310
1-800-252-BLADDER, OR see their website at Http://www.nafc.org
--ask for their resource guide ,listing products and services for
incontinence
***********
Parkinson Foundations - Outside the U.S. include:
European Parkinson Disease Association - EPDA
Website: http://www.shef.ac.uk/misc/groups/epda/home.html
Address:Postbus 46
3980 CA Bunnik
The Netherlands
Phone: (31) 306-561-369
Fax: (31) 306-571-306
E-mail: not found <<<<<<<<<<<<
Camilla Flintermann, CG for Peter 80/9+
Oxford, Ohio
http://www.newcountry.nu/pd/members/camilla/one.htm
<[log in to unmask]>
* * * * * * * * * * * * * * * * * * *
* Ask me about the "CARE " list *
* for caregivers of Parkinsonians *
* *
* * * * * * * * * * * * * * * * * * *
Camilla Flintermann, CG for Peter 81/70/55
Oxford, Ohio
http://www.newcountry.nu/pd/members/camilla/one.htm
<[log in to unmask]>
"Ask me about the CARE list for
Caregivers of Parkinsonians ! "
