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Janeaet, Joe and anybody else who is interested I am intrigued that how I feel after 26 years with this disease so interests so many people - I have also had a number of requests for the list of my symptoms as I prepared it originally to go with my Social Security application. Janet's revamped version of it is much more professional, which is why I used it on my appsication. Which I sent iin last week. I hope that this litle flurry of attention does not negatively impact my application. Hilary Blue (50/33/24) """"""""""""""""""""""""""""""" janet paterson wrote: > > hi all > > whew, now that that little excitement has been announced > i can get back to replying to joe's real message > At 17:00 1999/07/08 -0700, joe wrote: > >Janet, > >Thank you for composing and making available your excellent description of > >Parkinson's disability. I am going to make several print-outs of your work > >and send it to several members of my family who are not certain how > >Parkinson's Disease affects people who have it. > > Joe Thome > > thank you for those kind words, joe! > > the disability description was written > with the social services bureaucracy in mind > so it has a fairly blunt and tending to the negative slant > it has been stripped of emotion for the same reason > > my post "what does 'off' mean?" might make an interesting counterpoint > since it is intensely personal and emotion-oriented > > i happened to have posted both 'description' and 'off' recently > and then felt i had to address the potential > of 'scaring' a newcomer to us and to pd > so i posted 'scary' as well > > i think it's important to look at all sides of the situation > so i will post 'off' and 'scary' on my website > next door to 'description' > > thanks for your message > > and > > here's hoping that you and your friends/colleagues > haven't been infected! > > janet > acting list mom > > janet paterson > 52 now / 41 dx / 37 onset > snail-mail: PO Box 171 Almonte Ontario K0A 1A0 Canada > website: a new voice <http://www.geocities.com/SoHo/Village/6263/> > e-mail: <[log in to unmask]>