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Dear CYBERFAMILY:

Please try to accept this not as bragging but as the truth as I
experienced it.

I can only say that seeing the 30-minute, "Forum 2000" show  today, on
TV, has been a MAJOR event in my life..  Two personal care attendants and
I saw it together . Another drove across town, to tell me how
"outstanding" I was for all 30 minutes. A fourth one called to tell me
that her boyfriend and she both think I was amazing.

I still feel so grateful that I held together for the entire taping
session at WPME-TV.

I had an intensity and a smile ,and a mental acuity, that persevered
throughout the entire
show. I was shocked to see myself with shoulders rolling in dyskinesia,
hands and
fingers tapping on wiggling legs. I was shocked to see how much I've
aged.  I was completely composed during the interview, but at home,
watching it, I was VERY emotional.

The host even asked me how I could still be courageous, since I have
deteriorated so much!  The thought of "deteriorating" REALLY hit hard.

The show ended, and I burst into tears. At the same time, I was
screaming, "it took me fourteen years of fighting this horrible disease
to  FINALLY to get on TV alone, and be interviewed!  Thank God I got this
 done!"

I do not have a videotape yet.  I hope someone out there saw it.  I
called Fox TV in
New York (212) 301-3000, and an editor named Dario (he only gave me his
last name) told me that he would call Portland's WPME for a copy.  He
would let Todd Ciganek know that I would be very grateful if it could be
used for national broadcast.


Please push for this.  The tape is absolutely incredible.  I am still
amazed that this all happened so fast, and with such superb results.

I talked about stem cells, Udall, sleep deprivation, protein blockage,
needing help, bering hit from all angles, but still seeing my life as an
opportunity to help others.  Forgive me, but this is a "DYNAMITE"
videotape that MUST be seen.

God Bless,

Ivan  :-)


On Thu, 8 Jul 1999 16:52:19 -0400 Hilary Blue <[log in to unmask]> writes:
>Did anybody see Ivan Suzman on television today?
>
>I live outside the viewing area, but  i'd be interested to hear from
>those of
>you who saw it, what you thought, and how it came across.
>
>So, how about letting us all know?
>
>Hilary Blue

^^^^^^  WARM GREETINGS  FROM  ^^^^^^^^^^^^  :-)
 Ivan Suzman        49/39/36       [log in to unmask]   :-)
 Portland, Maine    land of lighthouses           deg. F   :-)
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