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No, Janet, sadly he didn't comment on the information. I hope to have better success in Peoria but am somewhat skeptical. To give him the benefit of the doubt I think that perhaps he hadn't had time to read and digest it all. Hopefully??? And hopefully we will be coming home Friday. Frankly, they can't keep him any longer than that involuntarily. Keep us in your thoughts and prayers as we travel home. I have heard that the University of California at San Francisco is a "center of excellence" for Parkinson's. We are only about three hours from there and I would like to get a second opinion ... or in this case, a fifth or sixth opinion. Gee whiz. Can anyone tell me anything about this facility? Is a doctor's referral necessary to make an appointment? We will ask the doctor, however, I'm finding that I need to be armed with information BEFORE doing that. Thanks, Carole :-) -----Original Message----- From: janet paterson <[log in to unmask]> To: [log in to unmask] <[log in to unmask]> Date: Monday, July 12, 1999 5:37 PM Subject: Re: Update >hi all > >At 15:41 1999/07/12 -0700, carole wrote: >>I want to thank all of you on this listserve for your kind responses. I >>feel I should give you an update although I know that most of you know >>about this kind of treatment much better than I do because you have >>experienced it first hand. > >some of us have >but anyone connected with pd need to know this stuff >period > >>I just talked to my husband's neuro here. I had dropped off the >>information that Janet Patterson so kindly sent to the list and informed >>him that Ted was in the hospital. He told me that perhaps it was >>something Ted did differently back there in Illinois like "something he >>ate." I kid you not. I find this a little bit alarming coming from a >>"trained" neurologist. At this point I was so flabberghasted that I >>felt like crawling through the phone. Then he informed me that he saw >>him just two weeks ago and he was "fine." They didn't change anything. > >i thought the new neuro in the hospital in illinois >took ted off tasmar 'cold-turkey'? > >did ted's 'old' neuro not comment on this >and the dangers inherent? >[the whole point of the information i sent you] > >>Well, he saw him for 15 minutes (if that much). I see him 24 hours a >>day (more or less). I've seen this coming on for awhile in fits and >>spurts. He is not fine, believe me. Although he is still well >>oriented, he is hyper and agitated. Definitely not himself. Even his >>speech patterns are revved up which is about all I can judge over the >>phone. Sadly, all I could hear on the other end of the phone with the >>neuro was "don't blame me; I didn't do anything wrong." I'm not trying >>to blame anyone. That is sort of pointless at this point in time. I am >>just trying to get the problem resolved. I'm not a trained neurologist >>but it escapes me how when you have someone with a diagnosis of >>Parkinson's which slows down activity and you see them exhibiting the >>exact opposite all of a sudden plus he is on a fairly good dosage of >>Sinemet CR 50/200 t.i.d. and has been on Mirapex t.i.d. for a year and >>on Tasmar t.i.d. for six months, that you wouldn't look at the >>medications FIRST rather than assuming that a person needs psychiatric >>care. I mean look at the obvious FIRST. I don't think you have to be a >>trained anything to figure that out. > >yes!!! > >the worry is not just that med-induced psychosis symptoms are mis-read >but that the tasmar withdrawal can produce side effects >like malignant neuroleptic syndrome >which can be fatal >period > >any doc who recommends such a course of action >should be up for malpractice imho > > >thanks for the update > >janet > >brief note >long 'off' >Hormonezzzzgggggrrrrr > >janet paterson >52 now / 41 dx / 37 onset >snail-mail: PO Box 171 Almonte Ontario K0A 1A0 Canada >website: a new voice <http://www.geocities.com/SoHo/Village/6263/> >e-mail: <[log in to unmask]> >