Hi Barb, Ted has been changing for some time I saw it in the chat room he has not been himself for some time and I have been worried about him. Janice ----- Original Message ----- From: Barb_MSN <[log in to unmask]> To: <[log in to unmask]> Sent: Tuesday, July 13, 1999 11:11 AM Subject: Re: TED > Carole and Ted... > > I wonder if Ted might have had any beverages containing caffeine > prior to the "agitation attack?" > > I've gone to lunch with several PWPs and watched as we each had > near-mood-altering experiences while downed glass after glass > after glass of iced tea or colas on empty stomachs while waiting > for our meals to be brought to the table. And if that wasn't > enough, the bus-boy kept topping off our glasses with even more > the caffeine-laden beverages of every few minutes throughout the > meal. > > We were all FLYING by the time we left the restaurant! > > I've seen this caffeine reaction a number of times in Parkies - > frequently accompanied by dramatically increased dyskenesia, rapid > speech, and giddiness (plus, it's mighty tough on one's bladder!). > > This possibility rang a bell with me upon reading your original > message, but I felt kinda silly suggesting it at the time. > However, In an effort not to overlook something so simple that it > might not be obvious, I'm decided to run it by you. > > You're both in my thoughts and prayers.... > > Barb Mallut > [log in to unmask] > > > -----Original Message----- > From: Carole K. Menser <[log in to unmask]> > To: [log in to unmask] <[log in to unmask]> > Date: Tuesday, July 13, 1999 7:43 AM > Subject: TED > > > Hello -- > > I talked to Ted this morning and he is sounding so much better. > Thank God. And I talked to his sister who arrived last night and > was at the hospital. She said he seems fine -- just sleeping a > lot. Probably from the Mellaril??? Hopefully, we will both be > able to fly back home on Friday as planned. I'm hopeful his neuro > here will take him off the Melliril when we get back. I think so > as he reacted negatively to hearing that they had put him on that > medication. We hope to go to the Parkinson's center of excellence > at UC San Francisco as soon as possible for an evaluation. Ted is > totally oriented as he has been all along. He always knew where > he was and could answer questions in a totally coherent and > rational manner. I talked to him for over an hour on the phone > when he was in the middle of the crisis. He responded and did > what I asked him to do. He wasn't suicidal or threatening to harm > anyone. In fact, he was the one saying that he needed to get some > help. He just simply could not control the hyperactivity (I'm > thinking that perhaps this is a better term than "agitation") from > the overmedication or combo of meds, it seems to me -- along with > the severe dyskinesia that he has never before experienced. I'm > hopeful that once his meds get straightened out, things will > settle down a bit. > > Thanks again to everyone for all your help, information and > support. Keep us in your thoughts and prayers over the next few > weeks especially. We'll do the same for you. :-) I'll be > leaving in a couple of hours. > > Carole Menser >