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> > Friends! > Dont forget we must keep up the pressure on the media to tell IVAN SUZMAN'S > story. Mr Ciganek is to speak to Ivan on the phone tomorrow, I believe. So > lets go on sending him faxes and calling him so that he knows we are sincere > in wanting Ivan's story told natiionwide. > I haave attached this to Nina Brown's letter so that you can see how an > expert tackles this ! Well done NIna, you are the best and set a wonderful example. > > The numbers to contact are: > > 212 301 3300 tel > 212 301 8274 fax > > Come on, folks, lets hear it for Ivan! > > Hilary BLue > > Nina P. Brown wrote: > > > > Dear Ivan, > > The following fax was sent today. Congratulations...Joe and I > > hope it helps. Keep up the good work. > > > > Dear Mr. Ciganek, > > Ivan Suzman, who has Parkinson’s disease was interviewed Tuesday for > > WPXT-TV. He has an important story to tell and many of us feel it > > deserves as wide an audience as possible and should be broadcast > > nationwide. > > > > When I was 44 years old I was diagnosed with Parkinson’s. Parkinson’s is > > > > a progressive neurological disorder that destroys the brain cells > > controlling motor function. The available treatment only partially > > alleviates the resulting stiffness, tremor and slowness of movement that > > > > can eventually leave its victims unable to walk, to talk, even to move. > > > > I have worked with Ivan as an advocate for the Morris K. Udall > > Parkinson’s Research Act that was signed into law last November > > authorizing the National Institutes of Health (NIH) to fund up to $100 > > million in “research focused on Parkinson’s disease.” As of this date, > > the Act has not been properly funded. > > > > The estimated cost of Medicare, disability, etc. to our country is $25 > > BILLION dollars a year, which comes down to $63 million a DAY. The > > Udall act could be funded in less than two days! Experts continue to > > tell us that they could find a cure if they had the funds necessary for > > research. Having PD is comparable to having polio. You’re a prisoner > > in your own body. We found the cure for polio. Iron lungs are a thing > > of the past and PD could be as well. > > This country would find the money for people that just suffered through > > a hurricane or other natural disaster but doesn't consider it a disaster > > > > that every nine minutes another person is diagnosed with this horribly > > debilitating disease.There couldn't be a more compassionate, more > > compelling, more economical way to spend our tax dollars! > > > > Ivan has a lot to share and I’m sure your viewers around the country > > will appreciate having seen it. > > > > Thank you, > > Nina Brown