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Ivan, Ivan, Ivan! <grinning> As much as I'd like to take all that credit ya heaped upon me, YOU were the fella who persevered in getting onto that TV program on behalf of not only yourself, but all PWPs. All I did was review what was an excellent video (ok... so I woulda preferred to see a Tom Selleck video, but hey...) <wee smirk> Speaking of "credit," I must give credit where credit is due to my fellow Parkie and good friend, Richard Bohn, for being the person to originally contact The Leeza Show and acting the liaison between the show's rep and the PD community. Richard also invited assorted members of our PD support group, including moi, and arranged rides for some of our folks to get to the Paramount Studios lot in Hollywood (a long drive for many of us). I *WILL* take credit for losing 25 pounds after seeming myself on TV! Barb Mallut [log in to unmask] -----Original Message----- From: Ivan M Suzman <[log in to unmask]> To: [log in to unmask] <[log in to unmask]> Date: Sunday, July 18, 1999 2:29 AM Subject: Re: Review-Ivan's Video /JUST RELEASED >Dear List-family, > > Just a few comments for us "insiders" about the brand-new, 26-minute, >videotaped interview about my life as a PWP, " The Challenge of Young >Parkinson's Disease," just released on July 14, 1999. > > First, THANKS to List-member Barb Mallut, for her quickness! Her >candid review was completed just 2 hours after I had called her this past >evening, to find out if she had even received the video in the U.S. mail. >She had already gone to work, having received it earlier in the day, >and, having already watched the film through twice on her v.c.r. by that >point in the evening. AT work, despite battling PD herself (Barb is a >Younger-Onset PWP). > > Secondly, about the review. Barb has had the courage, and the >brilliance, to appear on an episode of the Leeza show devoted to >Parkinson's Disease, this past winter. Barb had found a way to slip >through the wall that usually keeps folks like PWP's and their caregivers >way off in audience-land. Barb found a way, undoubtedly with the vocal >support of her many friends in greater Los Angeles, to get two younger >married PWP's and their spouses (one PWP was a woman, one a man), plus >herself, as guests on ONE show. That was an amazing achievement, to have >championed FIVE of us PWP's and CG's to appear all-at-once on parts of a >MAJOR, nationally seen, afternoon talk show. > > I hope as many of you as possible will find "The Challenge of Young >Parkinson's Disease" worth COMMENTING on, whether to the List, to you >local newpaper's film editor, to your librarian, to your radio, TV or >other announcer, to your club's bandleader, to your neurologist, or even >to your aspiring Hollywood or Manhattan agent! > > Again, "The Challenge of Young Parkinson's Disease" is available >directly through me, by writing me at 9 Range St. Portland, Maine 04103 >USA. Cost is $13.00 per videotape. > > Finally, a hopeful development. The videotape has been requested by >Richard Kelly, now apparently a top-level assistant to Assignment Editor >Todd Ciganek, at Fox-TV's New York City news desk. Thank you, Virginia's >Hilary Blue and Texan Nina Brown - - Hilary, for initial telephone work, >and Nina, for your moving , persuasive writing and fax-ing, as evidenced >in our List's current post from you, "FRUSTRATED!", which has been >CENTRAL in the developing interest in my filmed interview going >NATIONWIDE by the folks at Fox. > > Mr. Ciganek told me on Thursday that we List-people ought to telephone >our LOCAL FOX TV AFFILIATES, and urge them to request nationwide >broadcast, by calling Fox at 212 301 3000. > > > Cordially Yours (as best as I can manage at 5:20 AM - I awakened just >55 minutes >ago for my pre-dawn medicines), > >Ivan Suzman 49 current age/ 39 diagnosis/ 36 appearance of symptoms/ ? >age of onset