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hi all

At 23:09 1999/07/18 -0500, ed the hot-rodder wrote:
>
>7-18-1999
>Got up 6:00 am
>08:45 am  -1 Sinemet CR 25/100  (Carb/l-Dopa)
>10:45 am  -1 Eldepryl  5 mg
>11:05 am  -1 Sinemet CR  25/100  (Carb/l-Dopa)
>12:25 pm  -1 Eldepryl 5 mg
>03:00 pm  -1 Sinemet CR 25/100   (Carb/l-Dopa)
>
>05:50 pm
>* Going Down Hill Fast
>* Legs Getting Stiff
>* Getting Hard To Pick up Feet
>
>05:50 pm  -1 Sinemet 25/100
>
>07:00 pm
>* 5:50 pm Sinemet Did Nothing
>* On Crutches Cannot Pick Up Feet
>* Cannot Go Forward
>* Hard To Do But Can Go Backward
>* Slurred Speech
>* It Took 2 hr To Put things Up Outside Should Have Taken 15 minutes


off the top
it sounds to me like you are undermedicated
your PD symptoms are 'showing through' the levodopa
and
you do not seem to have full 'coverage' of levodopa
throughout your active hours

prepare yourself
for the jaNET INTERrogation:

how long have you had pd?
how long have you been on sinemet cr?
[is the 5:50 pm med regular sinemet or sinemet cr?]

how was your medication schedule established?
how does it fit in with your meals?
[the reason the 5:50 sinemet did 'nothing'?]

what are your pd symptoms like at other times of the day?
i.e. when i presume your meds are 'working'

have you tried a daily analysis like brian collins'?
[available at the wwweb archive site - see my website under pienet/words]

pd med management can make us or break us

we have to learn
to listen to our bodies
[no one else can!!!]
and observe our bodies' reactions to our meds

in other words
collect all the evidence
[good, bad, indifferent] in an objective manner
and use that evidence to develop a responsive med regimen
[with our medicos, need i add]

as the late great alan bonander said, the stresses of being
over-medicated [dyskinesia]
or
under-medicated [bradykinesia]
are to be avoided if at all possible

searching and adjusting and fine-tuning ourselves
into the middle road
is the goal

imagine your body as a chevy sedan
becoming more and more finely wrought and maserati-like
treat it with the same finesse
it doesn't deserve any less


janet

janet paterson
52 now / 41 dx / 37 onset
snail-mail: PO Box 171  Almonte  Ontario  K0A 1A0  Canada
website: a new voice <http://www.geocities.com/SoHo/Village/6263/>
e-mail: <[log in to unmask]>