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hi all At 22:14 1999/07/19 -0400, sherilyn wrote: >Thanks Carole. It seems like when I take more sinemet or >miripex the dysken..(sp) is terrible. Maybe a second opinion >is in order... it's possible and maybe even probable and cannot hurt one whit! we need to learn and learn and keep on learning this is not a waltz in the park this is a tough test and a long term one at that >My husband travels a lot, >my three children are out of town, >I'm feeling lonely and scared... and that's exactly why we're here [pigs and pmid's notwithstanding!] we parkies/pwps/parkinsonians/patients/victims/survivors have been tossed a challenge of grand proportions some might say terrifying proportions but it ain't so imho if we can learn to accept the challenge take up the gauntlet study for the test with as much grace as we can muster do you belong to a 'three-dee' support group? how about other family and friends? you were diagnosed in 97 but i'll bet you had symptoms long before that so you are a relative newbie to this game okay - question period: how long have you been on meds? why did you start them when you did? what were your symptoms like then? what are they like now? when last did you see your neuro? have you discussed the changes you have described to us with her/him? have you tried keeping a daily/hourly/minutely diary to record your symptoms and your med regimen? [see my earlier message today in re collecting evidence] did your neuro recommend any 'neuroprotective' approaches e.g. selegiline, anti-oxidants, vitamin c, vitamin e? have you read the 'psychosocial' article on my website? [in the pienet/words/nuggets section] carole wrote to you: >> I have no business practicing medicine without a >> license-am not an M.D- and am learning that PD is a >> great mimic and may present and progress differently >> for different individuals,BUT-it doesn't sound like >> you're being medicated adequately-See another doctor >> or two or more or as many as it takes-and stay in >> touch with the List-you'll find lots of support here. >> Carole Hercun 53/51/45 and all i can say to that is hear! hear! and ditto! >I guess Im really scared of how fast its going. >At 53 I'm just not ready to die... your anxiety and fear could possibly be contributing to your symptoms we tend to be susceptible that way if allowed free rein our fears can drag us down into a fear/stress/symptom/stress/fear vicious circle i know it well, been there, done that it's only been 2 years since your diagnosis... i wouldn't be surprised if you are still 'mourning' your perceived losses added to which if you don't feel confident about your med regimen controlling your symptoms... yikes, a double whammy i'm glad you wrote to us we are here and not going anywhere [too fast, that is] your cyber-sis janet janet paterson 52 now / 41 dx / 37 onset snail-mail: PO Box 171 Almonte Ontario K0A 1A0 Canada website: a new voice <http://www.geocities.com/SoHo/Village/6263/> e-mail: <[log in to unmask]>