 |
 |
hi all At 18:08 1999/07/20 -0500, ed keith <[log in to unmask]> wrote: >The jaNET INTERrogatoin: >I found that I had Parkinson 5/24/1995 two weeks after retiring... four years ago and i assume you had symptoms for some time before diagnosis? how old are you now? >I have been on Sinemet CR from day 1. I have Sinemet CR 50/200. >Sinemet CR. 25/100. Sinemet 25/100. Sinemet 10/100 >The 5:50 pm Sinemet, if I feel like my body is running out I take >the reg. other wise I take the CR. >My medication schedule was set by my Near, I am on my third one and >every one was different... do you mean that each neuro's approach or advice was different? have you been to a movement disorder specialist? or at least a neuro who specializes in pd? where do you live? >I was told to fine tune it, and every time I cut it that changed things... what exactly was meant by 'fine tuning'? did you take it to mean reducing your overall med intake? >How does it fit with my meals? It don't >I usually eat one meal I day at the senior Citizens Club. >I know what I eat makes a difference, I didn't know when made a >difference... what time of day do you have that meal? 'when' is certainly a concern, as time marches on, since a lot of us find that a large [meaning normal sized] meal taken prior to meds can render the subsequent meds virtually useless >I checked my notes and this has been going on for at least 2 weeks... what kind of notes have you been keeping? and what exactly do you mean by 'this has been going on...'? do you mean the evening 'drop off' of your med 'coverage'? has something changed in the past two to three weeks? i.e. your med intake, your diet, any supplements you might take, any other changes to your daily regimen, lifestyle, stress, etc.? >When my mediation is working I don't know I have Parkinson... perfect! this is the way things should be particularly at your 'medium-rare' stage [!] >I have not tried a daily analysis did not know there was one. >I will try to find it... brian collins has put together a med effectiveness analysis scheme maybe he will comment on it it's available through the 'james' website where the list archives in the u.k. are kept [see my website below and follow the links to pienet/words] when last did you see your latest neuro? have you discussed these recent changes with her/him? as a former 'medium rare timer' now edging toward plain 'medium' [as opposed to 'old timer', at least in pd terms] i think you might be progressing to the point where pro-active management of your meds becomes more important any other opinions from other 'medium timers'? janet janet paterson 52 now / 41 dx / 37 onset snail-mail: PO Box 171 Almonte Ontario K0A 1A0 Canada website: a new voice <http://www.geocities.com/SoHo/Village/6263/> e-mail: <[log in to unmask]>