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Glad you are back and all is OK. Thanks for keeping us informed. Charlie "Carole K. Menser" wrote: > Hello again -- Well, we are back from our ordeal. Ted was released > Wednesday morning and we flew home Thursday. We just barely made it > back by the hardest -- a twelve hour trip with two changes -- pretty > pooped out, to say the least. The attending physician in Mental > Health in the hospital there was quite nice and spent a lot of time > with us on Wednesday. He explained why they had put Ted in the psych > ward until they got things under control and they had offered on > Tuesday to move him to a regular medical ward. At least that's > something positive. I'm not sure if this had anything to do with his > sister showing up on Tuesday morning or not and me coming on > Wednesday, but at least they tried to explain the situation. The > psychiatrist also said that when he first saw Ted he was acting like > someone who was experiencing way too much dopamine stimulation and he > seemed to agree with us that this was a problem with medications. > Unfortunate that the neuro there pulled him off Tasmar cold turkey but > it is a done deal now. They also were giving him his Parkinson's meds > at 8 a.m., 12 noon, and 5 p.m. -- when they remembered to give them at > all. How is that for evenly spaced timing????? Not to mention the > fact that they had no Mirapex in their pharmacy and had to wait until > someone could get some there from the hotel which was Monday evening, > I think. So, at best, he was getting his meds hit and miss for first > few days of this. So we get back home Thursday night and go in to see > the neuro here on Friday morning. He just couldn't understand what > happened. He wouldn't discuss the possibility of either > overmedication or dopaminomimetic psychosis at all. He did take him > off the Mellaril and put him on Risperdal b.i.d. -- plus continue > Sinemet CR 50/200 t.i.d. and Mirapex 1.5. mg. t.i.d. And he said he > wanted to check him IN A MONTH. I'll tell you, at this point in time > nothing should surprise me. It's just that if I had a patient that > had been through what Ted has, I'd be checking him in a week to ten > days at the max. Unfortunately, our choice of neurologists is > extremely limited. His old neuro was much better but moved out of the > country and sold his practice to this one. And the first neuro we saw > here had little patience or understanding. He is the one who told Ted > that eating the sprouted fava beans (which we were experimenting with > at the time) could kill him!!! The neuro had a resident or intern in > the room with him that day and Ted said it was all the young > doctor-to-be could do to keep from bursting out laughing at that > remark. Anyway, we decided to move on to another neuro at that > point. Overall Ted is a lot better although has slowed way down with > the medication changes and all the stress his body has been through. > We are hoping to get rested and then see about getting an appointment > at UC San Francisco's center of excellence. It's about a 4 hour drive > one way but that is well within reason. Just thought we'd check in and > let you know our continuing saga. Again, thanks so much for all the > information and support. It was most helpful. We're still hanging in > there and carrying on. Carole and Ted :-) -- ****************************************************************************************** Charles T. Meyer, M.D. Middleton (Madison), Wisconsin [log in to unmask] ******************************************************************************************