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-----Original Message-----
From: Nita Andres <[log in to unmask]>
To: [log in to unmask] <[log in to unmask]>
Date: Thursday, July 15, 1999 11:15 AM
Subject: list


>I wrote this earlier and posted it to the listserv instead of the
>information exchange?
>
>Yesterday I started counting messages at 5 am (awful time )This is what
>I found.
>PD 32
>non PD 19
>total 41
>
>I don't know what the replies with Re: will do to any screening process
>so I sent it to Charlie also.
>
>When Charlie gets back maybe he will have some ideas.
>
>I wll keep it up for 2 more days.  It may have some use on the other
>hand  it may not. Who knows?
>
>Nita
>NITA  what it means to me right off bad i am going to make a lot and i mean
a lot upset. first how long have you had PD? me 30 years 76 years old.  the
list is a one big support group. group is to help all in what they want to
hear. PD,NP,RE.  IF IT IS PD ALL YOU WANT TO HEAR ABOUT THERE HAS LOT OF
PLACES TO GO TO WHITH OUT THIS GREAT SUPPORT GROUP.  i have been a
pres,vpres. of our support group. lost lot of friends. i am one of 2 who are
a live from the fist that stared it. they all could do nothing but talk
complain how sick they where. very few had any friends as that was all they
could do or talk about. we been through this debate so many times. i found
out when i talked to friends i did not tell i had PD no not ashamed of
having PD friends just got tired of hearing about it. CHARLIE and i talked
about lot. NINA  it is us on the list to decide not CHARLIE. he has lot and
again lot of good ideas. if so many are unhappy do like BARB P.  did with
this list.  you go to all the work JANET,BARB,JUDITH,SO MANY HAVE DONE
 i may be only one who realy in joys this list as it has done so much for me
i just hope i don,t loose the many friend i have made and never met in
person. just like family to me so i may not answered you ?. but will stop
and not but my way i  always do.

                                   I.Y.Q     DON