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Dear Nina and Joe, Bill Heitman, many others, I did talk about the Udall Act and comment on stem cell research briefly, on the United Paramount Network interview , "The Challenge of Young Parkinson's", on WPME-TV, locally. IF I can get on Todd Ciganek's New York City-based network news on FOX -TV, I will certainly emphasize the FRUSTRATIONS WE ALL HAVE!!! Mr. Ciganek has asked for a copy of "The Challenge" THIS MORNING ON THE PHONE TO ME, so let's keep hope alive. I finally go him to hear me. He is the Assignment Editor. Ivan :-) On Fri, 16 Jul 1999 22:35:59 -0500 "Nina P. Brown" <> writes: >Thought I would share the following message that will appear in the >Parkinson Foundation of Harris County's August newsletter. Following >that is a short talk I gave at our monthly meeting today to vent my >frustration. > >My husband, Joe, and I returned from a tiring, but I hope successful >trip to Washington, D.C. where we attended the 1999 Public Policy >Forum >presented by the Parkinson's Action Network (PAN). From Invisible No >More, the focus changed to Raising Our Voices for a Cure. We practiced >advocacy skills, heard political and research presentations and >knocked >on doors. > >In 1997, after four years of advocacy efforts, the Morris K. Udall >Parkinson's Research Act was signed into law authorizing the National >Institutes of Health (NIH) to fund up to $100 million in “research >focused on Parkinson's disease.” As of this date, the Act has not >been >funded and much of the research has not been “focused.” > (SNIPPED) ^^^^^^ WARM GREETINGS FROM ^^^^^^^^^^^^ :-) Ivan Suzman 49/39/36 [log in to unmask] :-) Portland, Maine land of lighthouses 82 deg. F :-) ********************************************************************