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Thanks Carole.  It seems like when I take more sinemet or miripex the
dysken..(sp) is terrible.  Maybe a second opinion is in order.

My husband travels a lot,  my three children are out of town,  I'm
feeling lonely and scared

Carole Hercun wrote:
>
>  I have no business practicing medicine without a
> license-am not an M.D- and am learning that PD is a
> great mimic and may present and progress differently
> for different individuals,BUT-it doesn't sound like
> you're being medicated adequately-See another doctor
> or two or more or as many as it takes-and stay in
> touch with the List-you'll find lots of support here.
>                         Carole Hercun 53/51/45
>
> --- Sherilyn Sherry <[log in to unmask]>
> wrote:
> > Having been diagnosed in December of 97, I
> > reseached, joined this list,
> > participated in physical therapy, adjusted
> > medications and stayed in
> > touch with my physician.  Somehow I convinced myself
> > that ths would
> > progress over a long period of time.  (I believe I
> > remember someone on
> > the list who has had it over 20 years).
> >
> > I have almst lost the use of my right hand
> > completely, I feel short of
> > breath often, suffer orthostitic hypotension
> > (medication really helps),
> > and now I speaking is terrible.  I can't enuncaite.
> > My tongue and lips
> > just won't cooperate.
> >
> > Meds are 1/4 Sinemet x3, 1/2  miripex x3,
> > Proamatine x3 plus some
> > evista, citruscil.
> >
> > I guess Im really scared of how fast its going.  At
> > 53  I'm just not
> > ready to die.
> >
>
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