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Dear Nicole, I am very glad you sent your letter. I am an advocate/caregiver for my sister, age 46, diagnosed with Parkinson's 6 months ago. I too have on occasion hesitated about sending various things to the list. It is important to speak out. I have to remind myself of that constantly. I do not have Parkinson's. Someone very dear to me, whom I love very much, does, and I can only imagine what she is going through. One thing that came to mind in reading your post that I have had to remind myself of many times before in my life is... SILENCE = DEATH Alison Landes