Dear Charlie,
It somehow seems strange addressing you by your given name even though I
haven't met you
Before my surgeries, in Dec of 93 and 94, I was in the 86th percentile
of PD patients. My dysinesas were so severe that I needed a 5 foot channel
to walk in so I wouldn't hit a person or thing. Now, 4 - 1/2 years after
surgery at the Toronto Western Hospital performe by Drs. Andres Lozano and
Ronald Tasker, I'm in the 10th percentile.
Are you going to the XIII international Congress onPD in Vancouver from the
23rd to 28th?
Cheerss,
Bill
-----Original Message-----
From: Charles T. Meyer, M.D. <[log in to unmask]>
To: [log in to unmask] <[log in to unmask]>
Date: Wednesday, July 21, 1999 9:16 AM
Subject: Re: Energy Levels After Surgery
>Bill,
>
>>From the literature written about the stimulator it sounds like your
stimulator
>is set to near maximum in all areas. Have you had a replacement yet? What
>contacts are you using? Did you have bilateral or unilateral stimulation?
Did
>you develop dyskinesia or have it prior to the procedure? Is it on all the
>time? My left side has dyskinesia and akithesesia and therefore needed to
be
>cut back on the right IPG. The left IPG controling the right side may be
ok to
>try a higher "dose" I am generally doing well but it is clearly not as
good as
>originally. The nurse that sets the stimulator is conservsative because
of
>possible side effects but going to Chicago about every 2 weeks gets
tiresome. I
>do think we are going in the right direction however. I have never heard of
>starting that high and fast. It may be that they just turned it on at high
>voltage pulse width and frequency not having previous experience with it
and it
>worked. Where did you have it done?
>
>Charlie
>
>William Harshaw wrote:
>
>> Prior to my right side pallidotomy in Deember 1993, I was on 14 Sinemet
CR
>> 200/50 and 6 permax 1 mg per day. After the pallidotmy I was down to 9
CRs
>> and 4 permax. After left side DBS of the globus pallidus and STN in Dec
>> 94 - I was the first North American patient to have this procedure - I am
>> down to 4 CRs a day and 2 permax. My stimulator is a Medtronic Extrel
model
>> 1425, settings are 10 volts, 220 hertz and pulse width of 200, unchanged
>> since hookup.
>>
>> My energy level is high on a sustained basis since DBS ; I have
experienced
>> no problems and have not had an off period since hookup
>>
>> Hope this helps
>>
>> Bill
>
>--
>***************************************************************************
***************
>
>Charles T. Meyer, M.D.
>Middleton (Madison), Wisconsin
>[log in to unmask]
>***************************************************************************
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>
