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Bill, I am a PD patient first and a physician second when it comes to this list. Yes I know what you mean about that 5 foot channel. It keeeps me out of glassware shops though. My wife doesn't even try any more to get me into them.(Darn!!!). I am interested in more of your answers to my questions. Are you going to the Vancouver Conference? If there are a lot of people going I May try to get there if I can find a netfare. Charlie William Harshaw wrote: > Dear Charlie, > > It somehow seems strange addressing you by your given name even though I > haven't met you > > Before my surgeries, in Dec of 93 and 94, I was in the 86th percentile > of PD patients. My dysinesas were so severe that I needed a 5 foot channel > to walk in so I wouldn't hit a person or thing. Now, 4 - 1/2 years after > surgery at the Toronto Western Hospital performe by Drs. Andres Lozano and > Ronald Tasker, I'm in the 10th percentile. > > Are you going to the XIII international Congress onPD in Vancouver from the > 23rd to 28th? > > Cheerss, > > Bill > -----Original Message----- > From: Charles T. Meyer, M.D. <[log in to unmask]> > To: [log in to unmask] <[log in to unmask]> > Date: Wednesday, July 21, 1999 9:16 AM > Subject: Re: Energy Levels After Surgery > > >Bill, > > > >>From the literature written about the stimulator it sounds like your > stimulator > >is set to near maximum in all areas. Have you had a replacement yet? What > >contacts are you using? Did you have bilateral or unilateral stimulation? > Did > >you develop dyskinesia or have it prior to the procedure? Is it on all the > >time? My left side has dyskinesia and akithesesia and therefore needed to > be > >cut back on the right IPG. The left IPG controling the right side may be > ok to > >try a higher "dose" I am generally doing well but it is clearly not as > good as > >originally. The nurse that sets the stimulator is conservsative because > of > >possible side effects but going to Chicago about every 2 weeks gets > tiresome. I > >do think we are going in the right direction however. I have never heard of > >starting that high and fast. It may be that they just turned it on at high > >voltage pulse width and frequency not having previous experience with it > and it > >worked. Where did you have it done? > > > >Charlie > > > >William Harshaw wrote: > > > >> Prior to my right side pallidotomy in Deember 1993, I was on 14 Sinemet > CR > >> 200/50 and 6 permax 1 mg per day. After the pallidotmy I was down to 9 > CRs > >> and 4 permax. After left side DBS of the globus pallidus and STN in Dec > >> 94 - I was the first North American patient to have this procedure - I am > >> down to 4 CRs a day and 2 permax. My stimulator is a Medtronic Extrel > model > >> 1425, settings are 10 volts, 220 hertz and pulse width of 200, unchanged > >> since hookup. > >> > >> My energy level is high on a sustained basis since DBS ; I have > experienced > >> no problems and have not had an off period since hookup > >> > >> Hope this helps > >> > >> Bill > > > >-- > >*************************************************************************** > *************** > > > >Charles T. Meyer, M.D. > >Middleton (Madison), Wisconsin > >[log in to unmask] > >*************************************************************************** > *************** > > -- ****************************************************************************************** Charles T. Meyer, M.D. Middleton (Madison), Wisconsin [log in to unmask] ******************************************************************************************