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Yes, I am going to Vancouver. Big meeting, super speakers. Hope you can come -----Original Message----- From: Charles T. Meyer, M.D. <[log in to unmask]> To: [log in to unmask] <[log in to unmask]> Date: Wednesday, July 21, 1999 12:03 PM Subject: Re: Energy Levels After Surgery >Bill, > >I am a PD patient first and a physician second when it comes to this list. > >Yes I know what you mean about that 5 foot channel. It keeeps me out of >glassware shops though. My wife doesn't even try any more to get me into >them.(Darn!!!). > >I am interested in more of your answers to my questions. Are you going to the >Vancouver Conference? If there are a lot of people going I May try to get there >if I can find a netfare. > >Charlie > >William Harshaw wrote: > >> Dear Charlie, >> >> It somehow seems strange addressing you by your given name even though I >> haven't met you >> >> Before my surgeries, in Dec of 93 and 94, I was in the 86th percentile >> of PD patients. My dysinesas were so severe that I needed a 5 foot channel >> to walk in so I wouldn't hit a person or thing. Now, 4 - 1/2 years after >> surgery at the Toronto Western Hospital performe by Drs. Andres Lozano and >> Ronald Tasker, I'm in the 10th percentile. >> >> Are you going to the XIII international Congress onPD in Vancouver from the >> 23rd to 28th? >> >> Cheerss, >> >> Bill >> -----Original Message----- >> From: Charles T. Meyer, M.D. <[log in to unmask]> >> To: [log in to unmask] <[log in to unmask]> >> Date: Wednesday, July 21, 1999 9:16 AM >> Subject: Re: Energy Levels After Surgery >> >> >Bill, >> > >> >>From the literature written about the stimulator it sounds like your >> stimulator >> >is set to near maximum in all areas. Have you had a replacement yet? What >> >contacts are you using? Did you have bilateral or unilateral stimulation? >> Did >> >you develop dyskinesia or have it prior to the procedure? Is it on all the >> >time? My left side has dyskinesia and akithesesia and therefore needed to >> be >> >cut back on the right IPG. The left IPG controling the right side may be >> ok to >> >try a higher "dose" I am generally doing well but it is clearly not as >> good as >> >originally. The nurse that sets the stimulator is conservsative because >> of >> >possible side effects but going to Chicago about every 2 weeks gets >> tiresome. I >> >do think we are going in the right direction however. I have never heard of >> >starting that high and fast. It may be that they just turned it on at high >> >voltage pulse width and frequency not having previous experience with it >> and it >> >worked. Where did you have it done? >> > >> >Charlie >> > >> >William Harshaw wrote: >> > >> >> Prior to my right side pallidotomy in Deember 1993, I was on 14 Sinemet >> CR >> >> 200/50 and 6 permax 1 mg per day. After the pallidotmy I was down to 9 >> CRs >> >> and 4 permax. After left side DBS of the globus pallidus and STN in Dec >> >> 94 - I was the first North American patient to have this procedure - I am >> >> down to 4 CRs a day and 2 permax. My stimulator is a Medtronic Extrel >> model >> >> 1425, settings are 10 volts, 220 hertz and pulse width of 200, unchanged >> >> since hookup. >> >> >> >> My energy level is high on a sustained basis since DBS ; I have >> experienced >> >> no problems and have not had an off period since hookup >> >> >> >> Hope this helps >> >> >> >> Bill >> > >> >-- >> >*************************************************************************** >> *************** >> > >> >Charles T. Meyer, M.D. >> >Middleton (Madison), Wisconsin >> >[log in to unmask] >> >*************************************************************************** >> *************** >> > > >-- >*************************************************************************** *************** > >Charles T. Meyer, M.D. >Middleton (Madison), Wisconsin >[log in to unmask] >*************************************************************************** *************** >