Hello again --
Well, we are back from our ordeal. Ted was
released Wednesday morning and we flew home Thursday. We just barely made
it back by the hardest -- a twelve hour trip with two changes -- pretty pooped
out, to say the least. The attending physician in Mental Health in the
hospital there was quite nice and spent a lot of time with us on
Wednesday. He explained why they had put Ted in the psych ward until they
got things under control and they had offered on Tuesday to move him to a
regular medical ward. At least that's something positive. I'm not
sure if this had anything to do with his sister showing up on Tuesday morning or
not and me coming on Wednesday, but at least they tried to explain the
situation. The psychiatrist also said that when he first saw Ted he was
acting like someone who was experiencing way too much dopamine stimulation and
he seemed to agree with us that this was a problem with medications.
Unfortunate that the neuro there pulled him off Tasmar cold turkey but it is a
done deal now. They also were giving him his Parkinson's meds at 8 a.m.,
12 noon, and 5 p.m. -- when they remembered to give them at all. How is
that for evenly spaced timing????? Not to mention the fact that they had
no Mirapex in their pharmacy and had to wait until someone could get some there
from the hotel which was Monday evening, I think. So, at best, he was
getting his meds hit and miss for first few days of this.
So we get back home Thursday night and go in to
see the neuro here on Friday morning. He just couldn't understand what
happened. He wouldn't discuss the possibility of either overmedication or
dopaminomimetic psychosis at all. He did take him off the Mellaril and put
him on Risperdal b.i.d. -- plus continue Sinemet CR 50/200 t.i.d. and
Mirapex 1.5. mg. t.i.d. And he said he wanted to check him IN A
MONTH. I'll tell you, at this point in time nothing should surprise
me. It's just that if I had a patient that had been through what Ted has,
I'd be checking him in a week to ten days at the max. Unfortunately, our
choice of neurologists is extremely limited. His old neuro was much better
but moved out of the country and sold his practice to this one. And the
first neuro we saw here had little patience or understanding. He is the
one who told Ted that eating the sprouted fava beans (which we were
experimenting with at the time) could kill him!!! The neuro had a resident
or intern in the room with him that day and Ted said it was all the young
doctor-to-be could do to keep from bursting out laughing at that remark.
Anyway, we decided to move on to another neuro at that point.
Overall Ted is a lot better although has slowed
way down with the medication changes and all the stress his body has been
through. We are hoping to get rested and then see about getting an
appointment at UC San Francisco's center of excellence. It's about a 4
hour drive one way but that is well within reason.
Just thought we'd check in and let you know our
continuing saga. Again, thanks so much for all the information and
support. It was most helpful. We're still hanging in there and
carrying on.
Carole and Ted
:-)