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I'm in the Open Label part of a Riluzole test being conducted at the PD Center and Movement Disorder Clinic in Houston. The metrics used indicate that there is some benefit or else my PD is by nature a slow progressor. As it turned out, I was on the real stuff during the double blind part of the test - so I've 2+ years of Riluzole passed through. ----- Original Message ----- From: ERVIN J MCCARTHY <[log in to unmask]> To: <[log in to unmask]> Sent: Wednesday, July 28, 1999 10:55 PM Subject: Re: The Congress > Lanny, you mentioned Mirapex and Riluzol. Are you in a drug study > withRiluzole? If you are how is it going? > [log in to unmask] > ----- Original Message ----- > From: Lanny D. Weddel <[log in to unmask]> > To: <[log in to unmask]> > Sent: Wednesday, July 28, 1999 10:47 AM > Subject: Re: The Congress > > > > If you are like most of us, that son is the light of your life. Give him > > hugs. > > > > Lanny Weddel > > 'bout to be 57, known for 4 years, on Mirapex and Riluzole > > > > ----- Original Message ----- > > From: Marg Meikle <[log in to unmask]> > > To: <[log in to unmask]> > > Sent: Wednesday, July 28, 1999 12:33 PM > > Subject: The Congress > > > > > > > On Monday I wandered the 13th International Congress on PD, just because > I > > > could. I was diagnosed with PD about a month ago and the shock is just > > > wearing off, the learning curve is flattening. I happen to live in > > > Vancouver and happen to work in the media so figured, why not. I > e-mailed > > > their PR people and was straight with them--I will write about > Parkinsons, > > > but not for a while. They happily gave me a pass. > > > > > > You've all read the news from the congress: 6.8 million$ to UBC, Hitler > > may > > > have had It, Requip may be a great thing. I want to report this: PD is > > big > > > business. This was an enormous conference. Whacks of money is involved > in > > > PD research. Those drug companies had amazing displays. I got the groovy > > > briefcase, picked up lots of brochures from the various associations and > > > wandered through the rows on rows on rows of poster sessions on > research. > > > Much of this was over my head, as were the sessions for scientists and > > > neurologists. But I came away feeling hopeful. With this many smart > > people > > > working on a cure, with the increasingly aging population and with this > > > kind of awareness building, it will happen. > > > > > > Marg Meikle > > > 43 years old with a 19 mo. old son > > > >