In the two months since my husband was diagnosed he has gone from 2 Sinemet
(25/100) to 6 per day. He developed dyskinesia and his doctor prescribed
Backofen 10mg three times per day to counteract the dyskinesia. I questioned
him about the 6 being too much and was that causing the dyskinesia and he said
No, the dyskinesia just means that the drug (Sinemet) is working.
I know you folks aren't doctors, but what are your thoughts on this. Many of
you have already expressed concern about going from 2-6 per day in so short a
time considering he has just been diagnosed and since I've been reading this
list I don't recall seeing Baclofen mentioned, but I may have missed it since
this is all new to me. Is this commonly given to alleviate the dyskinesia?
This doctor is really totally unacceptable. The day he told my husband he had
PD he allowed him all of a 5 minute appointmet. Told him he had PD, take this
medication it will take care of things and ushered him out the door. Never
allowed my husband to ask questions about PD or the meds or told him what to
expect. At first I sort of thought it may have been my husband's fault because
he isn't really one to ask a lot of questions. But, the other day when I
talked to the doc (I work at the same medical center) I had a small list of
questions/concerns I wanted clarified and he totally brushed me off and
wouldn't give me the time of day. He was actually downright rude and totally
insensitive. Here he was prescribing a new medication and he wouldn't even
tell me how often to take it or what we could expect it to do. He kept trying
to hang up and I finally said, well will I find the instructions on how much to
take on the bottle when I pick it up at the pharmacy??? At that point he broke
down and told me to have him take 3 a day. I couldn't believe it. If this
was a broken arm that would be one thing - it would heal, but this is life
altering. I just can't believe a doctor is this unprofessional. There is
another neuro here that has Parkinson's listed as his clinical interest so I
tried to get an apointment with him and I couldn't get my husband in until
DECEMBER. Even though I work at a fairly prestigious medical center
(Dartmouth-Hitchcock Medical Center) it has become quite clear that I can't
get quality care here and we are going to Boston (130 miles away). I managed
to get an appointment there in October so we will muddle along with these meds
and hope this new doc is better. He comes highly recommended and if his
secretary is any indication (she was an absolute sweetheart on the phone) it
should go well. I'm keeping my fingers crossed.
Thanks again for letting me vent. I'm trying to be very chipper around my
husband and I don't want to complain to him about these things, but I just have
to get it off my chest.
Have a nice weekend!!
Jackie in VT
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