hi all
just to keep you all up to date
and to fish for comments and/or corrections
[btw, 31 list joiners and 25 list leavers in the past week or so]
janet
-------------------------------------------------------------
welcome to the newest PARKINSN list-member and cyber-sibling!
hello!
i am janet paterson [one tee]
sometimes known as the list-elf
sometimes known as the nerdette list-mom
please accept my greetings and warm welcome to what i consider
one of the finest sources of information and support
for people with parkinson's [PWP]
and their caregivers [CG]
barb patterson [two tees - no relation!]
sometimes known as the founding list-mom
established this mailing list in november 1993
i discovered it in october 1995 and count that discovery
as a turning point for me in dealing with my own pd
beware all netniks:
please note that none of us are medicos:
discussions here should not be construed as 'professional advice'
beware incoming e-mail:
please note that we currently have 1800 members worldwide:
list message volume can vary anywhere from 20 to 60 messages per day
beware 'list police':
this is our favourite PIEnet list description:
>>> Posting number 53115, dated 4 Dec 1998 14:43:07
>Date: Fri, 4 Dec 1998 14:43:07 -0500
>From: janet paterson <[log in to unmask]>
>Subject: Re: Suggestion for Newbie Subscriptions
>
>...
>my two cents' worth:
>...
>i cannot see the volume as a 'problem'
>whether there are 30 messages in one day or in one hour
>whether they are all about pd or not
>whether they are all about snake oil or not
>
>they reflect the living breathing organism
>which is this cyber-family
>
>we are not a corporation bound by company rulebooks and standards
>we are not a school bound by a curriculum and exams
>
>we are part of a new frontier of democracy
>where each one of us has
>the same opportunity to be heard as everyone else
>and
>the same right to speak as everyone else
>
>personally
>i find it awe-inspiring just as it is
below
please find a welcome message from barb patterson
along with our current PIEnet subscription instructions
please contact me if you have any questions or need more info
or visit the PIEnet section of my website [see below]
which i have dedicated to this
janet
janet paterson
52 now / 41 dx / 37 onset
snail-mail: PO Box 171 Almonte Ontario K0A 1A0 Canada
website: a new voice <http://www.geocities.com/SoHo/Village/6263/>
e-mail: <[log in to unmask]>
===========================================================================
Welcome!
You have joined the PARKINSN mailing list also known as the Parkinson
Information Exchange Network [PIEnet].
Please send a message to the list members (if you want to) introducing
yourself and any Parkinson's-related topics you would like.
Let me introduce myself. I am a secretary for six faculty members in
the School of Nursing, McMaster University. In September, 1992, I was
diagnosed as having Parkinson's ... hence my interest in this list.
I hope you enjoy your involvement with the PIEnet.
Barb
===========================================================================
Barbara Patterson [log in to unmask]
HSC 2J22 905-525-9140, ext. 22403
School of Nursing
===========================================================================
----------------------------------------------------------------
Subscription Instructions
the following is the text version
of information available on the World Wide Web at:
<http://www.geocities.com/SoHo/Village/6263/pienet/subs/>
updated 1999/07/19
subscription instructions
the short version
=================================================================
List Address: for posting a message to the PARKINSN listmembers:
[log in to unmask]
=================================================================
Command Address: for sending a command to the LISTSERV computer:
[log in to unmask]
=================================================================
To subscribe, send this command:
SUBSCRIBE PARKINSN YOURFIRSTNAME YOURLASTNAME
To obtain a list of the commands that the listserv recognizes:
HELP
To obtain your current subscription options:
QUERY PARKINSN
To receive copies of your own messages:
SET PARKINSN REPRO
To change from individual messages to the digest format:
SET PARKINSN DIGEST
To change back to individual messages from the digest format:
SET PARKINSN NODIGEST
To stop incoming mail temporarily:
SET PARKINSN NOMAIL
To resume incoming mail:
SET PARKINSN MAIL
To stop incoming mail permanently and terminate your subscription:
SIGNOFF PARKINSN
=================================================================
how to join
how to subscribe to the PIEnet listserv mailing list
To subscribe, send this 'command' message:
SUBSCRIBE PARKINSN YOURFIRSTNAME YOURLASTNAME
E-mail all 'command' messages to the listserv computer at:
[log in to unmask]
After you confirm your subscription by return e-mail, you will
start receiving messages as they are posted to the PIEnet.
here's a sample 'i want to subscribe' message:
================================================================
Date: 1999/12/31 23:59:59 EST
From: Ms. Wanda Joyne, PhD
To: [log in to unmask]
Cc: me
Subject: My First E-Mail Message to a Machine
----------------------------------------------------------------
SUBSCRIBE PARKINSN WANDA JOYNE
================================================================
here are some tips
* The "To" Header: The listserv has two addresses:
the List Address: use [log in to unmask]
for messages to the PARKINSN list-members; and
the Command Address: use [log in to unmask]
for commands to the LISTSERV computer;
incredible as it might sound, it's easy to mix them up...
* The "Subject" Header: This header (and anything typed in it) is
ignored by the listerv computer.
* The "Body" of the Message: This is where the listserv computer
looks for 'commands' in very specific nerd-lingo.
how to talk to the cyber-server
how to change your subscription options
There are various options which can change the way your subscription
is managed. There are specific words aka 'commands' that the listserv
computer will recognize and respond to.
All 'commands' to the computer should be in the 'body' section of your
e-mail message. The 'subject header' is ignored by the listserv.
Since the listserv computer at the University of Toronto manages several
mailing lists, all commands affecting your subscription must include the
name of our mailing list too.
The listserv name for the PIEnet is PARKINSN [not PARKINSON)
[the O was stolen by malicious hackers].
The Command Address for sending a 'command' to the LISTSERV computer is:
[log in to unmask]
To request a descriptive summary list of the 'commands' that the listserv
recognizes, send the following 'command' message:
HELP
To find out what your subscription options currently are:
QUERY PARKINSN
To change your subscription options to receive the digest format
[i.e. two or three 'lumps' of collected mail per day rather than
individual messages - possibly more convenient but less timely]:
SET PARKINSN DIGEST
To change your subscription setting back to individual messages:
SET PARKINSN NODIGEST
To stop the incoming mail temporarily:
(for vacations, etc, - this means that you 'miss out' on the pd listmail
during your vacation but if you want to 'catch up' on what you've missed
you can always request old messages from the listserv]
SET PARKINSN NOMAIL
To resume incoming mail:
SET PARKINSN MAIL
To stop incoming mail permanently and to terminate your subscription:
SIGNOFF PARKINSN
here's a sample 'i want to change my subscription options' message:
===================================================================
Date: 2000/01/01 01:01:01 EST
From: Ms. Wanda Joyne, PhD
To: [log in to unmask]
Cc: me
Subject: My Second E-Mail Message to a Machine
-----------------------------------------------------------------
SET PARKINSN NOREPRO
SET PARKINSN DIGEST
=================================================================
here are some tips:
* The "To" Header: The listserv has two addresses:
the List Address: use [log in to unmask]
for messages to the PARKINSN list-members; and
the Command Address: use [log in to unmask]
for commands to the LISTSERV computer;
incredible as it might sound, it's easy to mix them up...
* The "Subject" Header: This header (and anything typed in it) is
ignored by the listerv computer.
* The "Body" of the Message: This is where the listserv computer
looks for 'commands' in nerd-lingo.
how to talk to us cyber-siblings
how to post a message to all of us listmembers
After you have subscribed to the PIEnet, to post a 'public' message
for all the other subscribers to read, type your message in the
'body' area and fill in the 'subject line' with a brief description
of your topic.
E-mail all 'public' messages to the listserv computer at:
[log in to unmask]
here's a sample 'hello to all you list-members' message:
=================================================================
Date: 1999/12/31 23:59:59 EST
From: Ms. Wanda Joyne, PhD
To: [log in to unmask]
Cc: me
Subject: My First E-Mail Message to a Human Being
-----------------------------------------------------------------
Hello Everyone;
I have just joined the PIEnet and want to thank
Barbara Patterson for setting up this great resource,
and also the University of Toronto for hosting the list
and the archives rent-free.
More later.
Wanda
~v^v~ Ms. Wanda Joyne, PhD ~v^v~ [log in to unmask] ~v^v~
=================================================================
here are some tips:
* The "To" Header: The listserv has two addresses:
the List Address: use [log in to unmask]
for messages to the PARKINSN list-members; and
the Command Address: use [log in to unmask]
for commands to the LISTSERV computer;
incredible as it might sound, it's easy to mix them up...
* The "Subject" Header: This header might be the most important of
all; with e-mail volume on the list growing slowly but steadily,
a clear but concise description of what your message is all
about, only makes for good 'netiquette'!
* The "Body" of the Message: This space available! The only rule
here, according to the powers that be, is that personal attacks on
[or 'flames'] other listmembers could be cause for banishment.
* A "Signature": This is a feature available on most e-mail software
programs, and is completely optional for PIEnet members. (Some
listmembers - not mentioning any names - find it handy if the
message sender's e-mail address is included at the end of their
message.)
