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This advice from Barb is good and I suggest that as you mention all the work you do researching that you also mention you are part of an 1800 member PD email list where you discuss these issues, exchange advice and have instantaneous access to one another and the group is looking forward to hearing the results of your interview because we care so much about you. GOOD LUCK! - Marilyn - On Thu, 12 Aug 1999, Barb_MSN wrote: > Hilary.... > > Just be yourself, and be honest about your symptoms and feelings. > > It's likely you'll know more about PD than any SSA physician > anyways, and it might not hurt to let 'em know you research daily > on the Internet about the disease and anything relating to it. > This can put you in a position where you're taken seriously, but > if you don't stress that you must rest a lot while researching > because of increasingly uncomfortable symptoms (I.e., back pain > b, fingers stop working, etc..) it can be construed as you're > actually having FUN (perish the thought!| surfin' the Net. > > I'd suggest if at all possible, you arrange to be VERY "off" while > at the doctor's. It made a DRAMATIC difference in how the MD > viewed me when I unintentionally went into a major off-time while > he was doing an exam. > > This is NOT a time to be noble or saintly in attempting to appear > "normal, so if you go off, just let 'er rip and GO with it --- be > VERYoff!!! After all ... most SSA doctors would NEED something > THAT obvious just to get their attention and make you stand out > from the crowd. [snip]