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Guideline Telephone Script for FY 2000 Appropriations

Hello.  I am a constituent and a Parkinson's disease advocate.  May I
please speak with the staff person who handles health care issues?
[Yes, voicemail is fine if the person is not available].

My name is ____________ and I am calling to urge
[Senator/Representative] ____________ to support much needed funding
increases for Parkinson's disease during consideration of the fiscal
year 2000 Labor/ HHS Appropriations bill.

As you probably know, in 1997 Congress overwhelmingly adopted the
Morris K. Udall Parkinson's Disease Research Act, historic legislation
authorizing the National Institutes of Health to devote up to $100
million per year for Parkinson's-focused research.  To date NIH has not
fully funded the Udall Act — despite promising research and a
compelling national need.

I urge your boss to act this year to follow through on the promise of
the Udall Act by supporting funding increases of $50 million for
Parkinson's research at the National Institute of Neurological
Disorders and Stroke and $25 million at the National Institute of
Environment Health Science for FY 2000.  To provide the resources for
these much needed increases, I ask the [Senator/Representative] to
support the effort to ensure that the NIH budget is on track to double
over five years.

Please urge your boss to act this year on these important increases by
writing a letter or talking to the Chair of the Appropriations
Committee.  Time is not neutral for people with Parkinson's — the
disease is progressive, chronic and absolutely relentless — and we
can't afford to wait any longer.  Researchers have described
Parkinson's as the "most curable neurological disorder" — but finding
the cure in time for those currently suffering requires the additional
funding authorized by the Udall Act.

[For Representatives Only] Please also ask your boss to consider
joining the Congressional Working Group on Parkinson's Disease led by
Representatives Carolyn Maloney and Fred Upton.

Thank you.  Can I count on hearing back from you about the outcome of
the fiscal year 2000 Labor/HHS Approriations bill mark-up?  [Give the
staff person your name, address, and phone number so that s/he can
follow up with you.]

[If any questions arise that you do not feel comfortable answering, ask
the staff person to call the Parkinson's Action Network at
800-850-4726.]

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