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hi all At 01:06 1999/08/18 +0800, dennis wrote: >It is interesting to notice that almost imperceptibly certain >attitudes are becoming politically correct in our little >community. Which is a pity because political correctness >is a tool for social comfort not for truth.... IF you mean me, truth rates miles over the other to me and always has how on earth anyone could interpret me as politically correct, of all things, is beyond my comprehension >Take, for example the subject of end stage Parkinson's. Recent comments >by Joan Samuelson, as reported in the NY Times, brought this frightening >subject into discussion. And how did we respond - we denied the problem >existed... IF you mean me and my response to joan snyder i disagree and deny any such denial i simply pointed out that i felt the sensationalizing as i saw it was being done by the journalist and not by joan samuelson >We said as to those who expressed their fear at the prospect of >Stage V PD that it would never happen... IF you mean me and my reply to joan snyder, i disagree - where in heck did you read this? >Have hope we said - look to the future, look to the cure. .. IF you mean me and my reply to joan snyder, i don't think i said that not at all in fact i was saying / implying / suggesting the opposite quit looking to the future [in either naive pollyanna optimism or in catastrophizing pessimism] unless you have a license to operate a crystal ball >And it is right that we said so - because we must have hope >and we must look to the future. We must also raise the money >that will fund the research that will find the cure... i think it's more realistic to say "may fund" and "may find" >But we should not, in the process, deny that Stage IV and V PD >exists. It is not some bogey man existing only in imagination - >it is real and for a great many of us it is not in the future - >it is already the present... IF you mean me and my reply to joan snyder, i don't think i denied the existence of anything in the present >What's more it has not been put on hold because "the cure" is >coming. Even if the cure is only 5 - 10 years away a great >many of us now in the earlier stages will experience these later >stages... you and me both! we "may" experience them but that potential that possibility [it is not a definite nothing is] is not going to stop me dead now is not going to freeze me into fearful do-nothingism and it sure as heck hasn't stopped joan which was my entire point >If today we silence those people who are prepared to share with >us the fullness of their experience, by accusing them of being >pessimists and gloom and doom merchants merely for stating the >way things are for them, this community will be doing itself a >disservice, and one the current crop of Stage I II and III PWP >will regret if the cure is delayed by even a few years... how on earth is a robust discussion and/or disagreement 'silencing' anyone? IF you mean me and my reply to joan snyder, imho her talk - doom and gloom - her words, not mine did/do not match her walk - hope, faith, work, love - her actions >The thought of late stage PD is a frightening one - but the possibility >of having to face it someday cannot be ignored. No doubt the argument >will be made that for the newly diagnosed it is all to much to soon... IF you mean me and my reply to joan snyder, i surely would never advocate anything less than "learn as much as you can" to anyone as i have said ad nauseum i'm sure: knowledge = power fear = ignorance >This is possibly true, but I would suggest that the decision >then rests with them to read or not read such postings - to >remain or not remain on this list . If we, for reasons of political >correctness join with PD in silencing the worst afflicted of our >community, we betray them - and we betray ourselves... IF you mean me and my reply to joan snyder dennis i am flabbergasted that you have interpreted my message as: a. politically correct b. ignoring or denying the stark truth of pd as we know it now c. an attempt to silence anyone d. an act of betrayal IF you don't mean me and my reply to joan snyder yikes whose messages are you talking about? janet janet paterson 52 now / 41 dx / 37 onset snail-mail: PO Box 171 Almonte Ontario K0A 1A0 Canada website: a new voice <http://www.geocities.com/SoHo/Village/6263/> e-mail: <[log in to unmask]>