Oh Margie... Reading your message reminded me of the old, "Cheer up - things could be worse. So I cheered up, and sure enough - things DID get worse!" <rueful smile> Someday I'll share MY "lavender maid-of-honor-dress story <it was SUCH an ugly dress that Sharon Stone or Cher woulda looked awful in it!) with you and we can both laugh and cry together. Sending a buncha love your way... Barb Mallut [log in to unmask] -----Original Message----- From: Dick Swindler <[log in to unmask]> To: [log in to unmask] <[log in to unmask]> Date: Wednesday, August 18, 1999 1:50 PM Subject: Re: Leaving the list - One thousand stories.... (Long - skip if you want) >Janice and Bob and others - > >You have just put into words what I was trying to think how to say - that is, >every one of us on the list is dealing with the stresses of PD plus all the >other ordinary stresses of life every day. I thought to myself that each of >us has a personal story to tell, and, if the truth were known, there are days >each of us is able to "go with the flow," and other days we're stressed out >by other things in our lives, including or especially PD, and may tend to >overreact to something someone has written. > >For example, although I'm not the PWP in our family, I'm sleeping each night >on the edge of the bed waiting for another "vivid dream" to make my husband - >obviously bigger and stronger than I am - to decide in his sleep that I'm the >enemy and kick, thrash, and flail, sometimes landing a good punch! There are >nights I can't wake him up right away, and it's frightening. It also doesn't >leave me particularly well-rested or resilient in the mornings. I've read >that vivid dreams progress to dementia and hallucinations, so although I try >to live for today, there's that worry creeping in around the edges. Add to >that the nights he gets up to go to the bathroom (thank goodness he still >can!) and wanders around lost until he wakes me up. Top it off with a vivid >dream the other night, accompanied by a scream, that woke our grandchildren >in the next room, and led them both screaming and crying into our bed. Does >he remember any of this in the mornings? No! And those are just the nights! > <grin> > >Add to that the fact that our son is getting married in a couple of weeks, >the bride-to-be wants me to dress in just a particular shade of lavender, and >I shopped everywhere I could think of for that color - discovering that I'm >so many pounds heavier than I used to be that nothing looked good, and when I >was restricted to that particular color, besides, it was a horrible >experience. I settled on an unflattering dress that fit the color >requirement, brought it home, tossed it on the floor, and kicked it into a >corner! However, me, I'm quite calm and unstressed these days! <grin> And >I won't even go into the impossibility of finding my granddaughter a flower >girl dress in that color, too! > >Sorry for going on so long, but what I'm trying to say is I'm confident that >each and everyone of us on this list has stresses and counts on this list for >support to help us through these times. And each of us, I know, is trying to >do the best he/she can to help other PWP by giving comfort, support, and >hope, and also further the research toward the cure. Not one of us means to >hurt another, yet we somehow do. > >I guess we should consider that maybe we, as a group, suffered more from the >recent disagreements about what was appropriate on the list than we realized, >and I think we're all still a little "tender" and "bruised," perhaps. I, for >one, want to apologize to anyone I've hurt, when I meant only to help or >educate or clarify - I've learned it's easier to do that if I don't start out >with one or both feet in my mouth. Strange how often I don't realize where >my feet are until it's pointed out to me! > >Anyway, to paraphrase the old TV show, "There are a thousand stories in >Parkinson City." I hope we can remember that however hard it is for each of >us, others are suffering in their own unique and similar ways, so perhaps we >have less resilience than others. I'm going to try to be less sensitive and >easily hurt (no matter how little sleep I've had), and will try especially >hard to think before I write! > > Is it possible that it has just been a long, hot summer? > >I can say that each one who leaves will be a loss to the list, but I can't >say that I will stick around much longer myself. I can't deal with the >arguing among those I need and count on the most when it seems that no one >else - friends, family - understands what it's like to live the life we lead, >either as PWP or with PWP. I'm going to think about it for a few days and >then decide. > >Warm regard to all our fellow listmembers, and thanks for being there when we >needed you for the past couple of years. > >Margie Swindler cg Dick, 54/17