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Joan....

WHEW!  You said it ALL, m'dear!

THAT'S what this List is about.  We ARE here
 for information but ALSO we're a support group
 for each other.   All that bottled up PD-related
pain and frustration CAN be shared here, and it
SHOULD be understood amongst us that one
doesn't weigh or otherwise belittle anothers
feelings.

It's not easy to stand up (even virtually) and just
let it all come out right in front of God and the
whole world (so to speak).  Yet that's the very
thing that helps to bind us together as a caring
and supportive group.

The information is the leaven in the loaf that
makes up the List, but the FEELINGS we share
are like all the REST of the ingredients, and
neither works without the other.

Hmmmmm..... (thinking)..... It must be lunch time,
'cause I'm relating everything I write to
FOOD! <grinning>

Barb Mallut
[log in to unmask]

-----Original Message-----
From: Stan or Joan Snyder <[log in to unmask]>
To: [log in to unmask] <[log in to unmask]>
Date: Wednesday, August 18, 1999 11:55 AM
Subject: PD-PC or NPC


>ENOUGH ALREADY! Dennis, that you so very much for coming to my
>defence-that hasn't happened since I was in 2nd grade and never
with
>such caring & generousity of spirit. Sandy, Janice, Bob & Don
(IYQ-all!)
>so very much--but the time has come for me defend my own
words...I've
>said it before & I'lll say it again: PD is not for wimps; I do
not  hide
>the fact that I'm a drooling, falling, shaking,
shot-out-of-a-cannon,
>bouncing around like a pinball on acid and frozen like potted
plants
>person with parkinson's. Maybe you aren't to that stage yet, but
I am.
>I'm not crying or whining-just stating facts. I hope & pray like
crazy
>that you never get this stage but believe me-it's out here & it's
real!
>Janet, I am the one who said that I wasn't ever going to post to
the
>list again because it seems like everytime I do, my words are
taken and
>disected and interpereted and given an entirely different spin &
it
>seems like to much energy to go back and fix the spin. My kids
went back
>to school today, my 11 yr. old daughter is sick, I just had to
pick my
>butt up after sprawling face first outside a coffee house in the
pouring
>rain, I'm looking at 48 in a few weeks and all I want for my
birthday is
>one of those thingys to make your toilet seat higher in the air,
I sleep
>in a lift chair rather than w/ my wonderful husband so that he
can get
>some sleep. Believe me, I am not whining-nobody promised me a
rose
>garden and I sure as heck believe that I'm blessed in a thousand
other
>ways-there are some days when I am truly the happiest person on
earth.
>So,
>please don't feel sorry for me;  just don't make believe that's
it's all
>make believe.  I have hope and I have a wonderfully positive
attitude
>but I am a realist at this stage of the game-please don't make me
>anything that I'm not.
>You know what tho...?? After meeting so many of the wonderful
people in
>person-it gets personal. I'm done-I've finished-I've had my say.
Thank
>you.
>
>
>Joan E. Snyder    47/9
>[log in to unmask]
><http://www.newcountry.nu/pd/members/snyder/page1.htm>
>"As if you could kill time without hurting eternity"
>Henry David Thoreau