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What a small world, Hilary, but goodness, you actually started out with "one of THEM" on YOUR side! That's gotta be an historic first for the SSA..... You GO, Girl! Barb Mallut [log in to unmask] -----Original Message----- From: Hilary Blue <[log in to unmask]> To: [log in to unmask] <[log in to unmask]> Date: Friday, August 20, 1999 6:38 PM Subject: i survived!!!! >First of all, i am not quite sure if I am being redundant - do i have to post >to both lists to make sure everyone (who wants to) can read this or is it >enuff to post just to the PIEN list? Does one assume that everyone in SPARKLE >still subscribes to the parent list? Well just in case, I'm sending to both. >NOW, all you terrific people, who showed me support, and who sent me notes and >messages of encouragement, thanks. Knowing that there is somebody out there >that cares really helped, because there sure aren't that many people around >here. Only two friends - they know who they are - showed any concern - and >i am very appreciative to both of them. >About the interview : >I took my last medication at 7pm last night. Ironically, I slept better than i >have in years - from 2 am until my daughter woke me at 8 am, to see if i >needed any help in dressing. But I was still alarmingly mobile for 13 hours >without medication - but apparently i looked awful - so i suppose that was >okay. My friend ANne and her husband took me to the appointment. >the doctors rooms were in a very unpretentious neighbourhood in nearby >Alexandria. When my turn came, Anne came with me into the examining room. >While waiting for the doctor, Anne suggested I take of my shoes and socks so >that the sight of my dystonic , twisted amd amantadine react;ive feet would be >the first thing to greet the doctor on her entrance. Good move ANne, it >worked. Also the fact that I was in my Armadillo Phase - ie tending to curl up >into a little ball as the dystonisa creeps through the different parts of my >body. This is the kind of state i am in uisually when i fall of my chair. I >didnt get much of a look at the doctor antill she started the actual neuro >exam - and them i tho;ught she looked vaguely familiar - but it wasnt until >she asked whether she kneow me from somewhere that we realised -- in those >dreadful days when i relied on the county clinic for my total care ( now i >onlu use it for primary care and I see Dr SIgmund as my neuro) i used to go to >the neurology clinic - which was served by a resident in neurology, who came >once every 2 months for2 or 3 hours and saw everybody with any sort of >neurological complaint - well guess who the resident was! SHe has now >qualified as a neurologist, and gone into practice on her own. But gets a lot >of clients from government referrals. Coincidence! >She said that she could see that i was quite severely impaired and that she >would recommend that i be given disability rights ! Hooray. Lets hope >everybody else agrees with her. >And that i don't have to wait too long. >Once again, I thannk you all for your concern and your support >Hilary Blue