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Tex: Yes. PD can be painful.I'm speaking both as a nurse and a PWP. My sister has a chronic form of Guillian-barre,another neurological disorder,which is also very painful at times. Especially when the body is fatigued, or stressed, the meds have worn off, the weather has changed, etc. I recently traveled from Arizona, where it was 105 degrees, to Connecticut, where it is cold and rainy tonight, and believe me, I'm feeling your pain. Carole H. --- double a enterprises <[log in to unmask]> wrote: > Chris, for me "on" is when the meds are effective > (not when they are > supposed to be, just when they work) and off is all > the other times. Also > for Jules, I don't know if this is the same, and > maybe someone else on the > list can help answer this or comment on it. I have > severe cramps and > contractions of limbs every time I go off meds. My > "normal" posture, when > off, is right foot curled and twisted, where I walk > on the side of the foot. > Rt hand curls and lays under my collarbone, and then > both are likely to > start shaking - my hand resembles someone strumming > a guitar very quickly. > Less common, my torso will cramp - this was actually > one of the first > symptoms I had that something was wrong - I get a > severe pain in my left > (usually) ribcage, and dont breath for 2 to 3 min. > It usually stops just > before I loose consciousness, and may continue for > 15 min or longer just > allowing me enough air to "enjoy" the experience. I > have felt internal > trembles occasionally, but they are rare for me. > The cramps were originally > diagnosed as a muscle set which had healed wrong. > Adding to the joy of > trying to figure out what is caused by what is the > fact that I have broken > my ribs at least 15 different times from 1 to 5 ribs > at a time (Willy Nelson > knew what he was saying with Momma's don't let your > babies grow up to be > cowboys"), and broken too many other bones to keep > track. So when I have > pain spasms, I rarely know what the original cause > was. I guess what I am > asking is, I have read several "experts" who say pd > isn't painful. Are they > correct, and is this caused by past injuries, or can > pd be contributing to > the daily pain? > And can I look forward to more of the same? Most of > the pain began when I > turned 30. At the ripe old age of 40 now, I am > beginning to get just a tad > depressed when I think about my health. I am going > to shut up and send this > before I think about it anymore, but if anyone has > any suggestions, I would > love to hear them on or off list. > bob "tex" > __________________________________________________ Do You Yahoo!? Bid and sell for free at http://auctions.yahoo.com